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sms43
Female, 66, Columbus, OH
"Lung CA w/metastasis to bone (sacrum and L3) and liver. Had radiation and now having chemo. In hospital 8/23 - 8/26/09 nausea & vomiting."
12:41pm, August 27, 2009
Synopsis - Rant! Mood
Tuesday, June 2, 2009 | A Venting story

Frown

Things are not really going very well for me. I finally weaned off the oxygen, and went to my oncologist for a routine 3-month follow up visit after my lung surgery. She said my tumor marker blood work was fine, as was my x-ray. Good news. I asked her to look at my right boob (surgery side) because it was swollen and red and warm (I suspected Lymphedema, silly me). She immediately flew into a frenzy and said I had to see a surgeon, have a mammogram, ultra sound, and MRI immediately and that if this was what she thought it was, I would be in the chemo chair within the week. She suspected inflammatory breast cancer, which is aggressive and has a poor prognosis. Scared me (us) to death. I had all the tests and saw the surgeon that week.  The radiographic tests were inconclusive, and so was the surgeon. They simply could not say one way or the other what it was; just that it was abnormal. The doctors decided to put me on antibiotics to see if it got better, in which case it might just be an infection. I was on them for 28 days, and did note improvement, but not resolution. The oncologist then said it couldn't be IBC because that doesn't get better. But still no cause identified, and symptoms remained.  I don't do well in an "I don't know" state, so I called and went to see the surgeon again, and asked him what he would do at this stage if it were his wife. He said he would recommend a tissue biopsy and removal of a "knot" that has developed in my incision line (lung). He suspects the knot might be a source of infection, but in any case he wants to know what this is so he can make a better decision about treating it. I should mention that I had a Urinary Tract Infection in the hospital in December, then a superbug-Ecoli. After I got home, I developed Strep A in my chest tube incision and in an IV site. So the potential for a persistent infection was there.

The procedure is scheduled for 6/11/09. It will be done under twilight sedation due to my breathing issues.

Meanwhile, I started Pulmonary Rehab at McConnell (a comprehensive local health center) and was in my 2d of 8 weeks (last week) when I experienced the same kind of pain I had when I had lumbar stenosis, and then a lumbar laminectomy and fusion of L-4/5. This time the pain is on the opposite side, and pain pills did not relieve the pain. I called Dr. Bay (neurosurgeon) and her nurse called in a dose pack of Prednisone for me. I began that on Saturday, and so far have very little relief. The Prednisone has shot my blood sugar up, so now I am on Metformin for that. I'm still on Coumadin (remember the PE), but have to stop that and start Lovinox (shots given to myself) 5 days before the biopsy, then back on Lovinox AND Coumadin for 5 days after the biopsy, then just Coumadin. I'm trying to continue my Pulmonary Rehab Program even though I can't walk very well due to the back/leg pain. Thankfully, they are being very kind to me.

The waiting, worrying, and now the pain are threatening to get to me!  I’m now into my 9th month since the lung cancer diagnosis.  I am thankful that my tumor was found before any spread, and as a result, I avoided chemo and radiation.  But now it seems like I can’t catch a break, but I keep saying to myself, “the glass is half full” and “God is always good”.  I know that I'd have to get better to die, so that's not a worry at this point.  But I have concluded that aging isn’t for sissies! 
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