Journal

I am back to writing again. I have been in so mch pain with my back and headaches that I had to take that trip to Durham VA Hospital afterall. Wasnt much they could do but take xrays and put me on a muscle relaxer for my back and perocet for my headaches. When the meds wear off the pain is there still. Still trying to get paperwork done for the social security appeal board and the Veterans Admin board. I have two appointments tomorrow -neuro and a ultra sound of my kidneys. Iam glad it is early in the morning. As for food not really hungry but I have been eating. Havent lost any weight. I am trying to start my own business. More paperwork. It takes my mind off this disease. If anyone has any suggestions about these headaches and backpain I would love to hear from you.

I have been having the worst back pain. Every time I mention it to the doctor, I am ignored or given cortisone shots that only help for a few days. This time the Vet affairs doctor took xrays. Come to find out I have a curve in my spine. They call it Scoliosis. Another thing to worry about. Social Security denied my claim. Actually told me to contact them if I get worst or die. Lupus has its moments. They still dont get it or dont want to. Well. I appealed it.

I got on the scale and weigh 131lbs. This is horrible for me. Iam use to 115lbs. I am trying to eat but it is driving me crazy. Iam trying to keep  this eating disorder under controll . It is hard notfocus on weight. I have been doing better at  taking meds. Doctors wont decrease or stop some of these meds. That sucks.

Hi everyone,

Sorry I havent written in awhile. My daugther brought three of the kids from Virginia to stay with me for three weeks. It was so great I didnt want them to go back home. I have been struggling to hold on to this house and I think I am going to stop fighting for it. i have been running back and forth to Durham and Raleigh Va hospital. The faintings have stopped but the dizziness and wekness still remains. The cramping and headaches are terrible. Havent heard from Social Security. As always hurry up and wait.

As for food, not been doing as well as I shold. It has been 90 degrees and hottier. TOO hot to be doing a lot of cooking. I been doing alittle better at taking my meds like I suppose to. The vet affairs center took xrays and found something  with both my spine and heart. Pobaly that predisone.  After 22 yeaars it is bound  to destroy something in me.

Well got to go. Kids are coming home from school. All year long school has its advantages.:)