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About Me
NanaMar
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About Me
Special education teacher and speech pathologist for 43 years; retired May of 08 to help daughter with MG with her children and get her to doctor, hospital, etc.; mother of 3 grown children; youngest child and only daughter diagnosed with MG at age 19; she is now 32; grandmother of 6 plus 1 on the way.; continue to coach elementary academic teams, substitute teach, and keep middle school and high school basketball books;
Special education teacher and speech pathologist for 43 years; retired May of 08 to help daughter with MG with her children and get her to doctor, hospital, etc.; mother of 3 grown children; youngest child and only daughter diagnosed with MG at age 19; she is now 32; grandmother of 6 plus 1 on the way.; continue to coach elementary academic teams, substitute teach, and keep middle school and high school basketball books;
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Recent Activity
Recently:
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1 discussion post
Friday
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NanaMar wrote a discussion post in the Myasthenia Gravis support group: Is anyone on cyclosporin or cytoxin? 11:24pm
They are having a terrible time getting access for my daughter to continue to receive plasma exchanges.…
Wednesday
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NanaMar turned 66 12:00am
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Journal
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Hugbook
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Photos
NanaMar hasn’t uploaded any photos yet
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Support Groups
Close Myasthenia Gravis
To share what we have learned about mg and treatments over the past 12 years as my daughter has had mg; To get support when we have questions and are experiencing something new.
Treatments
- Azathioprine Not Working
- worked for several years prior to her first pregnancy; did not take it between the two pregnancies about 3 years; has not worked since 2nd pregnancy
- Mestinon Working / Worked
- It helps, but does not take care of all of the problems.
- Thymectomy Somewhat Helpful
- My daughter had a thymectomy just a month after her diagnosis at age 19. Do not know how bad she might have been if she had not had it. It did not take care of her mg problems.
- Prednisone Working / Worked
- I have been on 50 mg of prednisone daily for two years. I was able to drop it to 40 mg daily but cannot seem to get by with any less. Side effects include weight gain but it is better than not being able to get out of bed.
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Friends
