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  • About Me

    Image of kissxxes

    kissxxes

    Female, 25, Married
    Cork, IRL
    Member since May 27

    • About Me

      25 years old - happily married with a gorgeous 5 year old boy. Definate diagnosis of acromegaly in January 2009, Recovering from surgery 2 weeks ago in October '09. On Hydrocortone steroids at the moment but off all other medications. App for Dgtt and Insulin Tolerance tests in January 2010 so fingers and toes crossed until then.

      25 years old - happily married with a gorgeous 5 year old boy. Definate diagnosis of acromegaly in January 2009, Recovering from surgery 2 weeks ago in October '09. On Hydrocortone steroids at the moment but off all other medications. App for Dgtt and Insulin Tolerance tests in January 2010 so fingers and toes crossed until then.

  • Recent Activity

    November 9

    • kissxxes gave vikkih04240 a hug 5:44pm

      Hi Long lost twin :-) Welcome to the group, it's been a great support for me over the last few months.…  
    • kissxxes and vikkih04240 are now friends 5:24pm

    July 27

  • Journal

    • This entry is private

    • This entry is private

    • My Story so far

      Mood May 27, 2009 7:53pm

      2006

      After much discussion me and my Partner decided to try for another baby, I came off the contraceptive pill and was delighted, if not a little …

    Read Journal

  • Hugbook

    Give kissxxes a hug



    • Hug

      From vikkih04240 November 9

      really it is so astonishing how alike we all are in this... I'm so thankful i found this place.... keep in touch I would love to hear more of your story

    • Prayer

      From Shelley62 October 21

      Hi Kissxxes,

      Glad to hear that the after effects of your surgery weren't bad - it's amazing really isn't it, when you consider how invasive it is. It's still early days after surgery, and a shock like this to your system could easily have affected your periods, maybe once things have settled, they might return to normal again.

      Unfortunately Acro does affect our hormones so much, and can cause a range of fertility problems, with the end result of an early menopause. Unfortunately I speak from bitter experience and only wish my consultant had caught this in it's earlier stages.

      Take it easy and fingers crossed that all returns to nromal

      xx

    • Get Well Soon!

      From Shelley62 October 21

      Hi Kissxxes

      Glad that you're back home safe and well after your surgery. It's easier said than done, but try to relax and take it easy for a few days. Let's hope you're our little success story from this site.

      Take care

      Shelley
      x

    • Good Luck

      From HSM October 4

      Yuo will be fine, just take lots of rest afterwards and no sudden bending down. Make sure your new hubby minds you well.

    • Hug

      From J0KEYJ October 2

      Hi K..saw the photos you uploaded..Ahh It looked such a happy day sun shinning such a lovely couple cute son congratulations and heres to many more wonderful days ahead JJ

    Read Hugbook

  • Support Groups

    • Close Acromegaly

      I joined this group to try and find out more about acromegaly, to learn from other peoples experiences. I'm hoping it will help to talk to other people who share my problems because it's hard for people close to us to understand.

      Treatments

      Octreotide Somewhat Helpful
      Had little or no reaction to Sandostatin during hospital tests, but was put on 3 daily injections of it while i awaited surgery which was supposed to happen within 6 weeks, got App to meet surgeon for over 6 months later so asked to be put on monthly injection. nausea and diarrhoea after daily ones but alot better on monthly except for fatigue on day of injection and pains in legs on last week of month.
  • Groups

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