Ravensgma's Journal

You know the best part of this journal thing is that I can write in here and no one who reads it knows who I am or where I work!  And right now my job is killing me. litteraly. These crazy people can not make up their minds what they want. I am supposed to be the nurse, the boss, the quality dept, the intake dept, the education dept, the rules and reg dept and still take care of dying kids. Oh and by the way keep smiling because they want to change our department from non profit mission to "lets bill the insurance company" when they KNOW insurance won't pay for palliative care for kids and NO parent elects hospice for their kid because you want to be able to try everything you can until the last minute for the miracle to save your child. Are they NUTS????? Let's add one more stress to the families of terminally ill kids. We are the only agency in our area that takes care of kids and families in their homes, where they want to be and where they are choices and freedoms that are not available in hospitals. This is a nationwide problem, I thought the agency was making a statement and leading the way to make changes happen and do what is RIGHT for these kids but $$$$ is getting the way. This corporation is huge, it can afford to pay for this special need and it has community support and major fund raising and philanthropy in place, what is wrong here. Somebody wants some recoginition so you move a really good program out of a really good mission so you can make it more public (public is good because kids need us) but then you screw up and want to bill. Then people have to qualify if the insurance won't pay?????  They say they will never bill a family, but I will believe that when pigs fly, if you will NEVER bill a family then don't put ANY billing in place that requires anybody to qualify. ONLY bill and accept whatever insurance you can and make it perfectly clear that NO family will EVER be billed or expected to pay for services from us. I know it costs money to run and support this but the $ is there and properly handled should last at least the next 20 years and maybe by then the insurance companies will be enlightened. 

Add this to my fibro and RA and raising a grandchild and a husband that is having rotator cuff surgery next week and the fact that I have bronchititis and I can not take anymore. Can just one thing in my life go screwy at a time?????  I need a break, I need to feel better and I need to quit whining, But I do feel better now that I told some one what I think