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  dottiew (10/31/09)

  I'm glad to hear you are feeling better with the Embrel. I hope it continues!
  
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  Rainbow
  

  surferchica (10/29/09)

  I am happy you are seeing results w/ the Embrel, even after 2 injections. Yeah! what a great sign. When my meds kick in, and I get energy, pain relief, etc, I often don't sleep as well or much at night....of course I have sleep issues too :( But you might need less sleep than before. Pain can take a lot out of you.
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  Hug
  

  lycesq (10/19/09)

  Really hoping the Enbrel works for you. Genentech is working on another drug and I'll try to get some details and post on the RA discussion - it's not available yet but in the pipeline.
  
  Lynne
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  Hug
  

  lycesq (10/19/09)

  Jess- amazingly, I'm still in remission. I went into remission after my surgery and almost dying and it's been about five months now! I do hope MTX kicks in for you - I know so many people it has helped!
  
  Lynne
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  Hug
  

  lycesq (10/18/09)

  How are you doing?
  
  Lynne
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  Little Love
  

  toby1129 (08/30/09)

  Thanks for your support. My boss will still be on vacation next week, so I won't be speaking with her in person until after Labor Day. She invited me to come swim in her pool next week, but I have reservations about crossing boundaries with her, as much as I think of her I still feel like it might be a mistake to enter into one and others personal lives too much. We do talk a lot and I trust her. There's just a gut level feeling I have about this so I think I'll trust it. Take care. talk soon. Sandy
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  Hug
  

  toby1129 (08/29/09)

  Thanks for the hug you sent me when I was at the beach. I had very limited internet access, but was able to get on for very short periods. You're quite right. I've been going through some situational depression. Medications can be very helpful, but one of the things I need to do right now is make some necessary changes to make living my life a little bit easier. It means accepting things like the need for a handicapped hang tag, hiring someone to clean the house a couple times a month and setting some limits on what and how much I can do at work. I've put in an incredible number of hours at work over the past year to accomplish something, but now the time has come to cut back my hours to 40 at the very least and pass some responsibilities on to others. I will need to have a talk with my boss next week. She is one of the few who knows about the RA and has said she'll take me any way she can get me so I think she'll be open to the changes I need to make. If not it might be time for me to think about temporary disabiity. I just cannot do what I once could. It's something of a relief to accept that. Hugs back to you and thanks for your kind words.
  Sandy
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  Well Done
  

  toby1129 (08/20/09)

  Thanks for sharing your experience about the beach. I feel like such an ungrateful little witch. The things I usually find such joy and serenity in are now pain filled and aggrevating. My husband never complains, but I just can't help but wonder what it's like to be saddled with a mate who was once by your side for everything. Now I can come to the beach if he pushes me in the wheel chair. I feel sad when he parks me and leaves me, but what's the poor guy supposed to do? Stay at my beck and call 24/7? I wouldn't blame him if he pushed me off a pier somewhere down the line. I'm sick of me, so how can he not be. Time to make dinner? I'm right there in the way. Nope can't cut up thoses veggies, can't open that, can't carry that pot. I don't even want to eat because I need him to cut my meat for me. Do I sound depressed? I am. I've been counting down the months and weeks waiting for this vacation. Now that it's finally here I just want it to be over. My sons and wife/girlfriend are here. Only one talked to me about the wheel chair and what that's like for me. I feel like it must be someone else. Surely this self pitying lump in a wheelchair is not the vibrant high energy person I've always been. I've spent my life trying always to do the right thing and help others. I believe we're all here to help each other out in this world. I've always carried that out from the way I raised my children, to the way I live my life and even the work that I do. I don't know how to cope with being the one who needs the help. I'm struggling in every aspect of my life. i'm even finding it hard to pray. I keep thinking there's going to be an epiphany and I'm going to understand why this is happening and what I'm supposed to do with it. The rheumy assures me that this is the way it goes sometimes. Med after med fails to work and you just keep trying others. It's been over a year with pain 8-10 and I don't get all hopefull when we start a new drug now. I can't believe this is even me so filled with negativity. I haven't had an easy life but I've always been able to figure out what steps I can take and and put one foot in front of the other until I accomplished all of them. Now I feel like I'm just marking time. Maybe I need psychological help. I just don't know what to do for myself. Sorry to be such a downer, Sandy
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  Ray of Sunshine
  

  surferchica (08/14/09)

  how's it going with the MTX & all? I hope you're feeling ok!
  
  thanks for sharing about your Eliz-that is a funny coincidence. Mine is recovering from a nasty virus & very swollen tonsils. Compettive gymnastics is really hard on the body, poor kiddo achy & broken :)
  my dd has broken her arm (badly) two toes, her foot, and a finer plus numerous sprains! I have come to realize that when she hurts & say so, she really is in pain.
  
  take care.
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  Get Well Soon!
  

  surferchica (08/09/09)

  daughters story is a little long but as a toddler she had toxic synovitis in her rt hip--her hip was frozen for 3 days & she could not walk. She was achy & limped aff & on after that. The pediatrician was not proactive. She stayed achy off & on but was also always injuring herself. When she was 7 & 8 she also had a one frozen elbow at a time--they were swollen & stuck at 90 degrees for 6 wks each...each episode a year apart. She saw a pediatric rhuematologist who said she probably had JRA...it might go away...use ibuprofin for aches...come back as needed. Everything became really bad just before she began to menstruate..at age 16 1/2...LOL....at least she started late. Many achy joints, fatigue, hair loss & labs had a low c4. My biggest fear is that she will get lupus like me.
  
  I would try not to worry. Auto-immune stuff may be gentically influenced at times but not a definite for your daughter just because you have RA. Have your daughter do sports. See a chiropracter for injuries, aches. Eat healthy & control weight gain with activity. We feel like this has kept Liz healthy enough prior to the big flair & has helped her cope with having RA...she has not stopped doing sports- water polo & swimming-- despite being on MTX. She is young, tough and fortunately has a high pain tollerance.
  
  How old is your daughter? Is she healthy so far?
  I hope you are feeling well. Let me know how your MTX start up goes. I hope you feel great. One thing I remembered when on MTX was to eat lightly...not have overeaten in the 24 hours prior to taking it. That seemed to help. good luck!

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