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  • About Me

    Image of Optim

    Optim

    Female
    CAN
    Member since May 23

  • Recent Activity

    • Sorry, there is no activity in the My Activity feed.
  • Journal

    • I survived the surgery!!!

      Mood July 25, 2009 6:13am

      Well it’s done!!! Had the surgery and wasn’t that bad.  I have to admit I was more terrified about not waking up than anything …

    • Surgery planned next month!?!?!?!

      Mood June 16, 2009 8:23am

      Well it's been a month since the dx. Got the sando shot with some side-effects (fatigue, headaches) for the first 2 weeks. Also felt like in a …

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  • Hugbook

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    • Hug

      From Shelley62 October 27

      Thanks Optim, I'm starting to get some of the symptoms back again, my ring is feeling noticeably tighter and difficult to get over my knuckle again, noticed some skin tags back on my neck and changes in my skin again. Unfortunately we all the symptoms all too well, so it's easy to spot them again and not write them off as signs of ageing etc. It's just so disappointing isn't it, but I mustn't grumble or complain as there are so many people much worse off than me.

      Take care Optim
      x

    • Thumbs Up

      From Shelley62 October 23

      Hi Optim
      The one benefit that I've really noticed is the difference in my focus. I definitely do not have as much brain fog as I did before, I can remember things much better and have been so much more focused at work. Before surgery I truly felt that my brain was surrounded in cotton wool, I would feel overloaded with information and inwardly wanted to scream for people to stop asking me to do things or tell me things, as I felt I couldn't take on anymore. I definitely don't feel like that now.
      I haven't noticed a massive difference in reduction of soft tissue, but hopefully that will come later.

      Take care

      x

    • Get Well Soon!

      From MBritt August 19

      Goo luck with that and let me know how it goes. Do you feel better already after the surgery?

    • Hug

      From MBritt August 19

      Thanks Optim! May I ask the size of your tumor? Mine is 2 cm and the doctor said he wont be able to get it all out as part of it is wrapped around the carotid artery. I may need to undergo radiation therapy. I noticed changes in my facial features. I am hoping they will go back to normal after the surgery. I'm just really scared about the surgery as I have a 2 year old. I'm trying to stay positive though. I'm lucky to have a great husband. Hope to hear from you soon.

    • Get Well Soon!

      From Shelley62 August 9

      Hi Optim

      So how was it really? Was it better or worse than you expected. The good thing is that you haven't had too long to build up too much anxiety about surgery. I really hope that it works for you and that they managed to get it all out.

      Fingers and toes crossed

      x

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  • Support Groups

    • Close Acromegaly

      Diagnosed with acro last week. Partly relieved by finding out there is a reason I can't stand looking at myself in a mirror anymore. Partly in shock and scared about what's ahead. MRI tumor 2.5 cm seems invasive. Meeting the neuro next week. Had Sandostatin injection yesterday. No side effects yet and still hoping (wishful thinking?) I will wake up to a new me!

      Treatments

      Octreotide Working / Worked
      Had injection yesterday.
  • Friends


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