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  • About Me

    Image of LeeS58

    LeeS58

    Female, 51, Single
    ND, USA
    Member since May 21

    • About Me

      I'm disabled by multiple chronic illnesses; my dream is to get a novel published so I write when I can (though currenly working on a non-fiction book because the publisher offered me a contract!). I'm single, no kids, and have an awesome dog, an Akita, who is my best friend.

      I'm disabled by multiple chronic illnesses; my dream is to get a novel published so I write when I can (though currenly working on a non-fiction book because the publisher offered me a contract!). I'm single, no kids, and have an awesome dog, an Akita, who is my best friend.

    • Interests

      Writing and knitting when I can, used to be hiking and cross-country skiing, but that's gone by the wayside. Spending time with my dog (most faithful of friends!) and my friends,

      Writing and knitting when I can, used to be hiking and cross-country skiing, but that's gone by the wayside.

  • Recent Activity

    • Sorry, there is no activity in the My Activity feed.
  • Journal

    • Exhausting But Joyful Trip To Minneapolis

      Mood July 8, 2009 11:47am

      So, my sister Shari picked me up Tuesday (6/30) about half an hour later than she insisted I be ready -- as usual! It was a long 400+ mile drive, but …

    • The Road Trip

      Mood June 22, 2009 3:30pm

      My sister, insisting that I'm incapable of driving outside of town, drove me around the countryside yesterday to get some photos for the …
    • Why does everything happen at once?

      Mood June 18, 2009 4:48pm

      OK. So I have CFS, FM, Depression, Crohn's, and "probably lupus" (undifferentiated autoimmune disorder -- maybe just the CFS, who the …
    • Friday -- like it matters...

      Mood June 12, 2009 2:30pm

      I did remember to go volunteer today. My eyes are really bothering me, though, so it was hard to read, and I had to keep re-doing things. So …

    • Oops -- it's Friday

      Mood May 29, 2009 12:48pm

      It's not bad enough I lose words, now I'm losing days, too. I was sure it was Thursday, really. Because Friday I volunteer for two hours at …

    Read Journal

  • Hugbook

    Give LeeS58 a hug



    • Hug

      From CFSED July 8

      HI,LEE,how are you doing today? I use to live in Grand Forks,N.D. how are you holding up? and doing and feeling?? do you get the free CFIDS chronicle? Take care CFS-FIBRO-LYME-RESEARCHER/Ed

    • Little Love

      From NetJet June 30

      Hey dear so good to hear from you. Your trip with your sister sounded fun only not the mixed up directions part. I wanted to send you a quick hug since you will be offline for awhile in hopes that you will get it before you leave. Have fun, and be safe, and let me know when you get back online. love and hugs D

    • Flower

      From con24 June 28

      here are some flowers for your pretty little self. Have you been having a good weekend?? Was good to get a wee cchat the other day... your road trips sound much fun, think i might start to do something like that!!!! I am beginning to feel a little better mentally... seeing the light at the end hopefully!!! Continue to be encouraged xx God Bless

    • Flower

      From NetJet June 28

      Thinking of you and hoping you have a good Sunday. Let me know how you are doing. I had a decent day still having bad fatigue lately. Its all good. I managed to get a few things done today anyways. Take care and many huggies to you.

    • Hug

      From NetJet June 27

      Hey I am back. First of all I hope you are doing ok today. I had a flareup and wasnt on long yesterday. I became so weak and fatigued with a headache. I am better now. I really enjoyed and appreciate you sharing your trip to the park with me. I love history I am a history buff. I fully understand not wanting to go shopping shooooooo it wears me out and I get so sensitive and easily irritated in that kind of environment. I cant tolerate it too long. And that is a long ride for you. I hate to hear you have lupus along with CFS. JenC on DS does too. She is from the UK. It just seems like when it rains it pours with CFS and our immune systems. I have all the symptoms of MS and have had for a year. I signed up for the Medicare advantage program today and thank God I will finally have insurance in a week. Hurray...I can finally get some tests ran. I hope you get to visit your neice and spend some time with your family. It helps to get out and do stuff sometimes as long as we dont overdo it. Let me know what you do. I hope you have a nice weekend. I wanta get over and see mom and dad Sunday. I try every sunday. I feel so blessed that both my parents are healthy and alive at age 73. Well my dear friend...It was so so good to hear from you and I loved your post about why more woman than men get CFS. You are smart and I appreciate you. hugs D

    Read Hugbook

  • Support Groups

    • Close Chronic Fatigue Syndrome

      It took me a year to be diagnosed -- ruling everything else out - but got to see Daniel Peterson, who ID'd the syndrome. Been fighting it since 1991... now have depression, but not when I got sick. ):

      Treatments

      Cymbalta Somewhat Helpful
      I'm on twice the max recommended dose (my doc did that) and it helps the depression but not the CFIDS or FM. Little energy & some weight gain. Sigh.
      Klonopin Somewhat Helpful
      It helps me to get restful sleep. That's about it.
      Pain Management Clinic Working / Worked
      I have a great PM doc -- this has helped more than anything
      Paxil Not Working
      It was horrible. Awful side effects, like irritability and suicidal ideation!
    • Close Crohn's Disease & Ulcerative Colitis

      I was diagnosed after coming back from Jordan with amoebic dysentery. It's mostly under control now, but flares still happen!

      Treatments

      Avoid Certain Foods / Chemicals Working / Worked
      I'm very careful about some fibers, spices, and sugar. I do better without sugar and alcohol, and when having flares, my "fruit" is apple sauce or bananas, period.
      Dietary Modification Working / Worked
      Just careful about some fiber and all fats, which cause flares. Nuts, Corn, broccoli and its relatives -- all very bad for me!
      Flagyl Working / Worked
      It worked when I was first diagnosed, but I felt like it was anybody's guess whether it would kill me before it helped. I wouldn't take it again.
      Lomotil Working / Worked
      It works almost too well; then I get constipated and that clears with anal fissures (sorry if that's TMI!)
      Prednisone Working / Worked
      OK, this works -- but the side effects are slmost worse than the disease. When I take it I feel like a cranky sausage!
      Probiotics Working / Worked
      These are BEST for me; I take probiotic supplements daily and eat yogurt with active cultures daily (almost the only dairy I can tolerate). I think this might be one key to a cure...
    • Open Fibromyalgia

      After first diagnosed with CFS in 1992, I was diagnosed with FM in 1997. Help!

      Treatments

      Acupuncture Somewhat Helpful
      It helps my migraines; otherwise didn't help. No side effects.
      Adderall Considering
      My doctor won't give it to me. I don't know why. He made me try Ritalin and that was awful; this can't be worse.
      Cyclobenzaprine Somewhat Helpful
      If I take it at bedtime, I can move in the morning -- if not, I can't. So I guess it helps. Still pain, but it helps.
      Cymbalta Somewhat Helpful
      This really helps my depression, but not my FM or CFS. I'm still exhausted and in pain all the time. I'm on twice the recommended dose but still am tired and often depressed.
      Effexor Not Working
      Made me irritable and I gained 100 pounds in 5 months - mainly water, but it was horrible.
      Guaifenesin Not Working
      I took it for 2 months and felt no difference.
      Lyrica Not Working
      also took for two months; no visible improvement, but no worse either.
      Morphine Working / Worked
      I take 20 mg Kadian every 12 hours. I have LOTS of breakthrough pain even at that, but it does help the diffuse pain as well as some nerve impingement pain that's not related to the FM.
      Ultram Somewhat Helpful
      This helps more with joint pain than the muscle pain of FM, but it helps a little. No side effects noted.
      Ritalin Not Working
      I went from bouncing off the walls totally manic to zombie nothing in between. It was awful.
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