MelMD

Close Neurofibromatosis

My husband has NF. I have 2 daughters. I believe my youngest daughter has NF too. We did genetic testing when she was @ 1 year & it was negative, but she has all the signs (groin freckling, lots of cafe spots). I'm just a nervous wreck...I'm already a worrier by nature. I have studied so much about the disorder, but I find the not knowing hard to deal with. My husband thinks I worry too much about, so I just needed hear from others.