Blacklabel's Journal

Well Evan goes back to his retinal specialist on November 10th and we do all those wonderful light tests and stuff so that he can be sick for hours. But i'm hoping for good news. Let's just hope nothing has changed. We will be going after that to Kosair's children's hospital for gentetic testing. He is so strong he told his TA that he can't tell mommy about the crumbles he sees because it makes me sad. I don't want him not to tell me and I try not to cry but that's my little man. So I save my tears for the shower or for God and let him wash them away. I feel like i'm so useless I can't fix him but I sure can stand beside him and go to the ends of the Earth to make his life everything he wants it to be. He says" who you love mommy" and I say "you scooter, who you love?" and he says"you mommy even when you are in Heaven I will love you" Who could ask for a better son...my special gift from God..