shgr

Close Endometriosis

i am a 21 year old who has been suffering with thoracic endometriosis for 6 years , this is when endo tissue is on the lineing on the lungs, it causes chronic chest pain, fluid build up on the right lung, fainting spells and spitting blood out of my mouth, i am now on bed rest because this has altered my life in such horrible ways. i can not explain how happy i am to have a group like this, whomever started this i want to give a big thank-you and i hope to give&get support from other sufferers.

Treatments

Danazol Somewhat Helpful

i have no seriouse side effects, i how ever seem to brake through with a cycle where this medication is supposed to stop it, so i dont get as many problems but i am still suffering significantly. i am no longer on this, as they want me to get very sick for testings so they can find all the endo on the lungs and get it removed asap, before it gets to bad where they will have to remove apart of the right lung or the whole thing.

Extended-Cycle Birth Control Not Working

just using to prevent pregnancy and to balance me out with the testosterone pills i am on. it also has not even made my cycles regular 15 weeks of non stop spotting.

Surgery Somewhat Helpful

laperscope, had not much endo on the ovaries or uterus but the small amount i had was removed which helped with the cramping i had in the pelvic region... hoping for removal of engo from the lungs Soon way to much pain way to often and is becoming threatening to my health and if this goes on much longer with out removal i may lose the whole right lung.