janlamacraft 
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About Me
janlamacraft
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About Me
retired now and too sleepy right now to talk about self
retired now and too sleepy right now to talk about self
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Close Narcolepsy
now 64 years old and problems with excessive sleepiness/sleeping since 14 years of age. Undiagnosed until about 25 years ago as didn't know anyone else had the same problem and not until a friend (a doctor) started to question me and suggest narcolepsy could be my problem and that I could be helped. Life transformed with use of (then) tenuate dospan, and now modafinil. No longer have help of this doctor and find have uphill struggle on all aspects connected with narcolepsy.
Treatments
- Dexedrine Working / Worked
- Modafinil works well on the sleep problem. Also have migraine (chronic daily variety) and doctors convinced case us modafinil. In "catch 22" situation as life without medication for narcolepsy is rather sad zombie like twilight existence. confused as don't feel doctors know how debilitating sleep problem is.
- Provigil Working / Worked
- Provigil Working / Worked
- It works well. Transforming effect. But side effect is exacerbation of headaches/migraines which also chronic problem. Doctors now treating migraine think I should cease to take modafinil. But without modafinil have no life - More of an existence.
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