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  • About Me

    Image of fwlady

    fwlady

    Female, 34, Married
    MO, USA
    Member since May 5

    • About Me

      My daughter has been having mysterious pains, joint pains, and now neuro symptoms. She tested positive twice for RMSF, but drs deny she had it. Trying to find a way to help her and praying that it will just go away soon.

      My daughter has been having mysterious pains, joint pains, and now neuro symptoms. She tested positive twice for RMSF, but drs deny she had it. Trying to find a way to help her and praying that it will just go away soon.

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    • Ray of Sunshine

      From tortoiselvr August 3

      thank you so much for your thoughtful reply - that is exactly what I'm afraid of happening - my growing to "okay" with "no I can't". I will say prayers for your daughter. My RA started as PR, too - there are others on the board who have PR (but I think just one or two).

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  • Support Groups

    • Close Arthritis - Juvenile

      DD has been having joint pain for over 6 mos. We have gone back and forth over what it might be. We are back to thinking rheumatological issues.

    • Close Rheumatoid Arthritis

      My 12yo DD has been suffering with intermittant pain for 6+ mos. I think that she has PR/RA. Trying to find ways to help her. JRA/PR aren't very active, so I thought I would sign up here. I was told by PR person that there is lots of info here.

      Treatments

      Tylenol Not Working
      Tylenol 3 did nothing for her pain.
      Ibuprofen Working / Worked
      helps some. Was allergic to Naproxen so back to Ibuprofen.
    • Open Asthma
      Type: Other

      My DH has intermittant asthma. My 10yoDD had baby asthma and now only intermittant. My 7yoDD had asthma confirmed. My son may have developed asthma after many infections, after misdiagnosis and actual CHD.

      Treatments

      Albuterol Working / Worked
      works for DD, adverse reactions with DS
      Duoneb Not Working
      Adverse reactions for both children
      Flovent Not Working
      did not work because misdiagnosis
      Inhaler Working / Worked
      worked for DD with episodes
      Pulmicort Too Soon to Tell
      DS sent home from hospital on steroids early
      Xopenex Working / Worked
      effective for DD, adverse effects with DS
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