Went to the MDA Telethon
September 8, 2009 9:36am
There was a strong urge inside to attend the MDA Telethon. Wasn't sure what or how it was to help me yet felt a need to go. I've been to …
jmaj58
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About Me
jmaj58
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About Me
This is one of my favorite pictures. It is from several years ago when I was quite a few pounds lighter than I am today. I also did not have Myasthenia. I like this picture because I was in a much healthier place in my life. I want to recapture that healthy lifestyle especially now that I have Myasthenia. The spirit of placing self care as a high priority is something I want more than anything. Sadly, I sabotage my own success and I am trying to figure my way out of this rut.
This is one of my favorite pictures. It is from several years ago when I was quite a few pounds lighter than I am today. I also did not have Myasthenia. I like this picture because I was in a much healthier place in my life. I want to recapture that healthy lifestyle especially now that I have Myasthenia. The spirit of placing self care as a high priority is something I want more than anything. Sadly, I sabotage my own success and I am trying to figure my way out of this rut.
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Journal
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While I'm Waiting
August 31, 2009 3:23pm
My eyes have been bugging me a lot the last two days. Still am off of work because no improvement. As I type this my eyes are closed. Hopefully there …
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In a fear-filled funk
July 24, 2009 11:00am
I haven't had a day like today in a very long time. I am powerless over the doctor's answer if I am to return to work or not on Aug 11. There …
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Thank you
July 14, 2009 11:19pm
Thanks to those who took time to pass along words of encouragement since my last post. Your kindness means a lot to me. I've had brighter days …
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Feeling scared
June 10, 2009 6:59pm
My first month on Mestinon was amazing. I could see everything and no ghosts or multi-dimensional images. The second month has been the complete …
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Hugbook
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Support Groups
Close Myasthenia Gravis
August 2008 my vision changed and drooping eyelids began. All MG tests from Mayo came back normal. Seven doctors later, the neuro-opth said it is MG. Rather than put me thru painful tensilon test, pass go and take Mestinon. Within days I noticed vision shifts for the better. Took 1 pill a day for 4 days, then when GI is under control. take 2 pills a day. When GI is under control, take 3rd pill. I am on day 7 - third day of two pills. Am itching a lot and not sure if it is Mestinon related.
Treatments
- Mestinon Working / Worked
- have been on it 7 days and am liking how it's making my vision improve. But not sure if this itching is related. I haven't even gotten to the full dosage yet.
