losing hope
June 14, 2009 1:14am
I am just plain frustrated and sad. My Mom has pnemonia and I found out from my sister. I am worrying about everything because my …
AirS 
8:50pm, June 17, 2009
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About Me
AirS
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About Me
I have FMS, live in upstate Ny, Have Chronic Depression, Borderline Personality Disorder, PTSD, Anxiety Disorder, IBS, Intersital Cystisis, Hyperventalation Syndrome, Paniac Attacks, Agoraphobia, Overweight, Insomnia, Asthma, Alllergies, TMJ, Skin sensitivity, Fertility Problems, CFS, etc. Doctors seem to find something more all the time.I am 37 amd jave been with same guy for 10 1/2 years. We fight alot and he doesn't really understand FMA. it confuses him and he some times thinks I am faking it. Am disabled and at home everyday. Doctor forbids me to drive so I am to codependent on boyfriend. Date rape survivor
I have FMS, live in upstate Ny, Have Chronic Depression, Borderline Personality Disorder, PTSD, Anxiety Disorder, IBS, Intersital Cystisis, Hyperventalation Syndrome, Paniac Attacks, Agoraphobia, Overweight, Insomnia, Asthma, Alllergies, TMJ, Skin sensitivity, Fertility Problems, CFS, etc. Doctors seem to find something more all the time.I am 37 amd jave been with same guy for 10 1/2 years. We fight alot and he doesn't really understand FMA. it confuses him and he some times thinks I am faking it.
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Interests
Reading Romance novel, family genaolgy, Like to garden but don't have much knowledge or green thumb, tend to over due it. Love Art History and would love to learn how to do crafts and draw. Like playing with Barbiea and toys to calm down, Watch alot of movies. Like shabby chic and antiques.Goas are to join some Clubs, find a new church, try to not be a beast to so many people, walking short distances. Used to love camping, making smores. Love swimming. Rather have a hot tub then a bed. Nature walks, wild floweres, Would love to be a MOM but know I am no well enough. Love the Lord.Like playing fashin games online. Would desperately like to learn to sew and can crocquet but hurts my arms. Not a good cook or housekeeper.Need to get rid of alot of things. Wish I could decorate my apartment but landlady won't let me. Procrastiant too much.Love Garage sales. Love my Mother lots and wish had strong family relations, but don't. Like helping people. Love Animals@ Wish I could have one.Listen to music of all kinds except punk and hard metal.Get addicted to reality shows like Survior but don't have digital tv. Saving upfor new tv or converter box. Like to write poetry and wish I had more confidence to write stories.
Reading Romance novel, family genaolgy, Like to garden but don't have much knowledge or green thumb,
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Journal
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Migraine
May 22, 2009 2:07pm
Hi,
I have been out of town for over a week. My Mom and Dad's to visit. My Mom is chronically ill and Dad is stressful. I had the best time …
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Bad day
May 5, 2009 8:58pm
Tierd today and in pain. Arguement with spouse. I don't know how to get him to realize how fibro works even after 10 years. He should know …
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Hello out there
May 3, 2009 7:28pm
I joined this support group yesterday and still haven't gotten a single message. I didn't have such a bad day yesterday. Today I got to …
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Hugbook
Hug
Hey, just wanted to drop in to say hello, and hope you are well1 HUGS from down south :)
Flower
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Flower
Moment of Peace
Just read your post and felt you could use a hug. In my prayers. Prayers for your mom too that her staff infection will be healed. Take care gentle hugs
Hug
hope things get better!
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Support Groups
Close Fibromyalgia
When I was a teenager I was diagnosed with anxiety disorder and depression. Since that I have been diagnosised with Fibromyalgia. I have basically been put on massive doses of meds. Some of which I have been taking for years. I didn't think much about my meds at the time, but now I am approaching my 37th birthday and want to get off my meds so I can have a baby. I have gone through withdrawl before. I am pretty strong and will not get pregnant on meds. I am not crazy. I just want to be a Mom.
Treatments
- Acupressure Considering
- Not meds, so I think about anything I would try that didn't cause chemical changes in brain and body.
- Acupuncture Somewhat Helpful
- Didn't do much. Needed it for anxiety but couldn't afford to go once a week. Was not covered by my insurance. she main worked on my gasto intestinal track which seemed to nothing. I asked her to calm me and do something for the pain. It helped with anxiety. No negative side effects.
- Adderall Working / Worked
- Don't know what this is?
- Aqua Therapy Considering
- I want one but no jets. I wish I had a house and could affort one. I live in an apartment and can't even have a dog! Hot tub with no jet was relaxing and felt wonderful. If you can afford it I say go for it! Nothing has ever felt better to me
- Cyclobenzaprine Somewhat Helpful
- Worked for a while but then became tolerant to it like all other muscle relaxants. I took Soma,Skelaxin, and am now on Zanafles which seems most effective but causes me to be very tierd and sleep like all other muscle relaxants.
- Cymbalta Working / Worked
- It works for depression but not aches and pain. Right now I don't know if I am depressed of depressed from pain. Didn't do anything for the physical side effects
- Duragesic Patch Not Working
- Please DO NOT use this unless really have too. If it for a short flare up maybe but I was on up to 75 mcg of this at one time and while withdrawl I thought I was going to die. I had side effect so bad I wished some one would hit me over the head with a hammer. I was cold, hot sweats, vomiting, diahreia, severe anxieties, aggressiveness, rocking, stomach cramps, headaches, chills, everything. The last 25 mcgs were the worst. I had to take weeks worth of Xanax to get through it. Think hard
- Effexor Not Working
- I don't want to talk about this one. Had been given overdose of serotin and had to be takent to the hospital. Ended up with hallucination and paranoia.
- Elavil Not Working
- This caused me to eat everything in site even when I wasn't hungry. I gained thirty pounds on this. It helped me sleep but it was definitely not worth it for me
- Gabitril Too Soon to Tell
- Not sure what it is?
- Guaifenesin Too Soon to Tell
- What would this help with. I have taken this when sick but not for Fibro. Does this help you sleep?
- Heat Working / Worked
- This is my blanky. I can't lay down or go anywhere without my heating pad. I have probably kept the heating pad industry in business
- Lyrica Too Soon to Tell
- As soon as it said side effect weight gain I said i am not going there. I took nuerontin and it did nothing, so whay try this.
- Neurontin Not Working
- Did nothing for me. Didn't see any side effects but didn't get any benefits
- TENS Working / Worked
- Have had it few times and it helped me not to take as much muscle relaxants. Am planning to ask doctor for percription so can get portable unit within next month. These can be very affordable through your physical therapist because they have connections with vendors.
- Ultram Working / Worked
- This is very effective for me, but it is addictive which of course i didn't know or wasn't told. Actually wasn't told. After a while if you don't take it it caused me to be very anxious. I had to taper it to get off it.
- Vitamin B12 Working / Worked
- I take this because my vitiam b12 is on the low side and my doctor feels that it is a good idea to have it higer. I don't have an side effects and feel people should consider taking this and getting tested for deficientcy. MY vitamin D was also bad around 17. This can really drag you down so check this out. They can really make you tierd if they are low and iron would be a good thing to check for also.
- Zanaflex Working / Worked
- Very helpful but addictive. I tend to get tolerant to meds easily and have to take more for flare ups and I am really at the end of the line for muscle relaxants. I have to taper this occassionally then go back on a lower dose to make it work the same again. Next thing i guess is the pain clinic.
