Strange blessings
May 31, 2009 11:24am
A reminder that clouds can have silver linings! I heard this on the radio one morning, and really liked the last two lines. After some googling …
lauracj
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About Me
lauracj
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About Me
I'm a 31yr old female in the UK working as a research scientist and trying to come to terms with not being the active person I was a year and a half ago. I have various symptoms, but as yet no obvious diagnosis - I'm hoping it's just 'one of those things' and will sort itself out in time, but meanwhile I have to remind myself to make the most of what I CAN do In Jan 08 I started getting severe acid reflux, with stomach problems (bloating, loss of appetite) and then developed dysphagia (swallowing problems) after a couple of weeks. My stomach has settled down now and the reflux seems to be better, but the swallowing is still a problem (I have problems with solid/lumpy food, so am pretty much on a liquid/puree diet) though it has gradually got a bit better. I've had lots of tests (endoscopy, barium swallow, monometry, 24 hr acid test, manometry, blood tests) and all were negative apart from some esophagitis. I'm sure I am getting some reflux still though (I'm on PPI's). Last December I started getting on and off pain and tingling in arms and legs, as well as often cold hands and feet. I've had physio and they believe it is due to 'neural tension' - ie tense muscles compressing the nerves. Some gentle 'nerve stretching' exercises have eased some of the symptoms, but I've now got an appointment with a rheumatologist. Oh, and I've also got Hashimoto's thyroiditis which was diagnosed a few years ago.
I'm a 31yr old female in the UK working as a research scientist and trying to come to terms with not being the active person I was a year and a half ago. I have various symptoms, but as yet no obvious diagnosis - I'm hoping it's just 'one of those things' and will sort itself out in time, but meanwhile I have to remind myself to make the most of what I CAN do In Jan 08 I started getting severe acid reflux, with stomach problems (bloating, loss of appetite) and then developed dysphagia (swallowing
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Interests
Lots! (which is good considering I 'm limited at the moment) Sailing, kayaking, hiking, dancing, playing piano and flute, theatre, cinema, knitting, reading, audio drama. And of course, trying to stay positive and keeping a sense of humour!
Lots! (which is good considering I 'm limited at the moment) Sailing, kayaking, hiking, dancing, playing
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Journal
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Welcome to the supprt group! There is also a member group for hashimotos too, if you want to join. Take care, and I hope you feel great soon!....Jazzi
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Support Groups
Close Sjogren's Syndrome
Have had various symptoms for over a year - acid reflux, problems swallowing, dry eyes, sinus/inner ear problems, muscle stiffness and nerve pain now. Possibly Sjogrens?... No diagnosis as yet
Open GERD & Heartburn
Acid reflux started suddenly. Has improved but am still getting reflux. Also have dysphagia (swallowing problems) probably due to reflux.
Treatments
- Antacids Somewhat Helpful
- Gaviscon has a layer which is supposed to suppress reflux - helps sometimes, but also tends to trap any wind as well.
- Avoid Certain Foods / Chemicals Working / Worked
- Avoid acidic foods, very spicy foods.
- Domperidone Somewhat Helpful
- Helps with constipation. Makes no noticeable difference to swallowing
- Ginger Working / Worked
- Definitely settles my stomach
- Prilosec Working / Worked
- Helps with acid a lot. Also had other PPI's but not sure there was much difference.
- Raising Bed Position Working / Worked
- Definitely helps (otherwise swallowing worsens). Have had problems raising bed high enough and wedge pillow may be causing some back problems.
- Reglan Somewhat Helpful
- Helped with constipation, but made me very tired - moved to domperidone
