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  • About Me

    Image of LesoleilFl

    LesoleilFl

    Female, 30, Married
    FL, USA
    Member since April 29

    • About Me

      My name is Adrienne, I am 30 years old.I've been married for 5 years.I am an engineering student struggling with Lupus, IC, Asthma, MCTD, vulvodynia....

      My name is Adrienne, I am 30 years old.I've been married for 5 years.I am an engineering student struggling with Lupus, IC, Asthma, MCTD, vulvodynia....

    • Interests

      I love art, I like drawing, painting, reading , I love music, music, I love to exercise, bike ride, I like playing the guitar, going to the beach, volleyball, dancing

      I love art, I like drawing, painting, reading , I love music, music, I love to exercise, bike ride, I

  • Recent Activity

    Recently:

    • 2 journal comments, 1 hug received, 1 hug given

    November 18

    November 5

    November 2

  • Journal

    Read Journal

  • Hugbook

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    • Chocolate

      From lajeana21 November 18

      Hola mi amiga,

      Como estas? Thank you for responding to my journal entry and for the nice message! I laughed when you said.. I fired that puta!!! That was histerical! I'm sorry that you had to go through that also, with your ex-doctor saying that you didn't want to take the Elmiron because you wanted pain meds instead. I just can't believe it! What a jerk! Do you have a nice doctor now? I'm going back to my regular doctor to tell him what happened. I don't believe I will be going to any other pain clinics every again. I filed a complaint against the doctor and will be filing another one with the Medical Board of Wisconsin. Mi esposo suggested that I go to the news with this too because he believes that there are several other patients who have been treated horribly too and doctors should not be treating patients this way. I had so much pain when I had a catheter put in for the urine test. It was awful and when I came home on Monday, I was in tears. After talking to Ed about it for awhile, I felt better but was glad that I didn't have to work. When I worked last night, it got my mind off of things. I still have a lot of pain today but emotionally, I feel better ever since I filed the complaint. Yeah, I can't believe my puertro rican friend tried to kiss me. He really likes me and he's married. But, since I told him to back off, now we have a normal friendship. I wanted to keep him as a friend because he's a sweetheart and we practice spanish sometimes. Now he knows his limits and he respects that so we can remain friends. I'm so glad that you had time to spend with your esposo and that you had fun at Universal Studios. Did you say you went bike riding too? I wish I could do that but I have too much pain doing that or horseback riding. I agree with you...having sex is very healthy for a relationship. My husband is having back problems and I'm having bladder problems but when we get better, I'd like to try sex again. I really want it so badly, I'm so cachonda. It's been a very long time since we tried and I want that intimacy back. What are your plans for Thanksgiving? I have to work so I think we won't do anything on this day. It sucks but my mom is nothing but drama anyways. How is it going with your sister living with you? I'm glad it's your cool sister! :) Don't worry about not having time to write if you're tired. I'm so exhausted and will be going to sleep soon. Thank goodness I have another night off from work. Next week will be a nightmare since Black Friday is approaching at our store and I think we will be working 11 hour shifts. It really really sucks only because after work is when I have the worst pain in my bladder. Bueno... que tengas una buena semana! (well, have a good week!). Como es tu espanol (how is your spanish)? Buena suerta con todo y te extrano! (good luck with everything and I miss you!). Espero que estes bien sin dolor (I hope you are doing well, without any pain). Hablamos muy pronto (we'll talk soon!!)

      Laura

      P.S. I love Juanes! What other kinds of music have you been listening to?

    • I’m With You

      From lajeana21 November 6

      Hola mi amiga,

      I'm so sorry that you had an awful flare after you went out. I can't believe that the Columbian guy tried to kiss you! Oh my gosh, you won't believe this... my Puerto Rican amigo tried to kiss me and I turned away. I told him to stop because I'm happily married and I'm not going to cheat on my husband. Estamos coqueteando todo el tiempo - we are flirting all the time,(that's cool that you learned coquetear). But... I have a flirty personality and he knows that I don't like him that way. He keeps asking me out and I say no... then, he says.. I understand, he doesn't want me to have any regrets. This guy lays it on thick and he won't give up. So, I stayed away from him and it seems like we have a normal friendship now. I hate temptation and I do not want to cheat so it's good that we stay away from each other, just like you are doing with your friend. Did you go to school and take your test? How did you do? I hope you are having a better week. I am so cachonda todo el tiempo and I want chacachaca so badly but my husband has some health problems so I don't want to pressure him. It's been such a long time since I've had sex and I'm going insane but I need to stay patient and stay away from my friend too because it's so very tempting. But... I'm a good girl, just like you. I just can't believe he tried to kiss me, I'm still shocked. I talk about my husband all the time. Too bad my friend is so hot. Como sea (anyways), how was Universal Studios? Did you get to spend time with your esposo this week? I love Juanes' music too, it's a little slower and easier to understand. I'm going to write my journal in spanish, tell me if you understand it. Keep up the great work with your Spanish! You are doing an excellent job! Te extrano mucho! Espero que encontremos alguna vez (I hope that we can meet each other sometime). :) Por favor escribame cuando tengas tiempo en ingles o espanol. Que tengas un buen dia y ojala que tu dolor se vaya muy pronto (have a great day and I hope that your pain goes away soon).

      Con amor tu amiga,

      Laura

    • Hug

      From lajeana21 October 30

      Hola Chica,

      I understood everything that your wrote in Spanish, awesome! I loved how you were joking around about how I should kiss or sleep with my friend, yeah right, I wish!!! Also, my husband is not patient enough to practice Spanish with me so he has to understand that I need to find my own friends to practice with, whether they are hot or not. Too bad! I do speak it with my husband but when I make a mistake, he gets mad and corrects me in a mean tone. I don't like that, at least my friends at work are nice about it, if I have mistakes. The Puerto Rican, Ephraim, makes tons of mistakes and I have fun correcting him. You are right too, we need to spend more time with our husbands. Next week, my husband only has off on Thursday and I have to work so I'm trying to switch my days. The bad thing is I work with Ephraim (puertoriqueno) tonight and all next week. I get so nervous by the way he talks to me but I swear I would never cheat and I like him as a friend. It's fun to practice Spanish with him too. My cute Mexican pal Belarmino was there tonight and he doesn't speak any English so we always talk too. I have fun at work. But anyways, how are you feeling today? Como te sientes? I enjoyed reading your message in Spanish. Did you understand what your friend translated for you? I hope so, if not, I know you will learn very quickly! I'm going out with my best friend on Sat. night. It's been a long time since I've seen her and I can't wait to catch up with her. We've been friends for 17 years, I can't even believe it. What are you doing this weekend? Gracias por escribirme y hablamos muy pronto. Que tengas un bien dia y te extrano! Espero que te sientas bien y pases tiempo con tu esposo. Cuidate!

      Te mando un abrazo,

      Laura

    • Hug

      From lajeana21 October 28

      Hey Chica,

      You may be confused by my last message.. I'm very sorry. I think your journal that you wrote was from a few months ago. I thought I saw that you posted something on here from early this morning so I clicked on it and it took me to your jounal from July, which is what I responded to. I'm so sorry, I've been so tired lately, I thought the journal was written within the past week. Anyways, how are you doing today? I have not been all there lately and therefore, have not been paying attention. It's about 5:30 am here and I just woke up an hour ago. I hope you are doing well and that you understood my message, even though it's about something that you struggled with a few months ago. Please write me when you can. How is your Spanish coming along? Take care, I hope to catch you on here later. Cuidate!

    • Prayer

      From lajeana21 October 28

      Hola my dear,

      How are you? I just read your journal entry and I'm so sorry for everything that you have gone through, including having dreams about your dad and having an argument with your husband. If you need to talk, please let me know. I'm glad that you went out with your friend that night to let off some steam. I can't imagine what you are going through, especially struggling with the loss of your father. I am always here for you and if you need something, please let me know. It's okay to be depressed and to drink. Let me know if you are going to see your psychologist. If not, please write me and I will help you. I am so sorry that you are struggling so much. I am praying that things will get better for you. I know you experience a lot of pain in the bladder when you are stressed out. I will try to log on later tonight, possibly I can catch you online. I have the night off from work. Please take care and I hope you are feeling better. I think your journal entry was from last Thursday. We will talk soon. I always have your back. I'm glad that you are my friend.

      Siempre Tu Amiga,

      Laura

    Read Hugbook

  • Support Groups

    • Close Interstitial Cystitis (IC)

      I was diagnosed with IC in 2004.It wasn't easy to get dx.It was a long and frustating process.I went to several doctors and I was always accused of being an hypochondriac and being crazy.At College I was asked if I was on drugs because of the frequent trips to the bathroom. I have this horrible pain every day and have become very depressed bc of it.

      Treatments

      Baking Soda Not Working
      Bladder Instillation Not Working
      Elmiron Not Working
      I am allergic to it.
      Enablex Not Working
      I had to stop bc I was experiencing urinary retention
      Macrobid Not Working
      Pyridium Not Working
      Gave me severe stomach pain and made my asthma worse.
      Atarax Somewhat Helpful
      Sometimes I cannot empty my bladder when I take it, 25 m I get really drowsy if i take it during the day and I cannot function
      Valium Working / Worked
      2 mg It really relaxes my bladder but it makes me really depressed
      Hydrocodone Working / Worked
      5/500 it did work but I became sensitive to it besides while I was taking it my asthma was getting worse
    • Close Asthma

      I've have asthma since I was 2 years old as well as severe food allergies.

      Treatments

      Advair Working / Worked
      Albuterol Working / Worked
      Azmacort Working / Worked
      Flovent Working / Worked
      Singulair Not Working
    • Open MCTD

      back in 2005 I was dx with scleroderma.I only had thight skin that would tear at my joints and joint pain then I started experiencing CFS,joint inflammation,rash on my cheeks,pleurisy,rash and hives whenever I when out in the sun on my arms that's when my doctor dx with MCTD,After he dx with MCTD I started having problem with my vision one day I woke up blind in my left eye I was like that for almost two weeks it was so scary!!.once I was driving and my right leg went numb I had to pull over

      Treatments

      Prednisone Working / Worked
      I eat a lot while I was using it.
    • Open Lupus

      Treatments

      Celebrex Working / Worked
      Medrol Working / Worked
      Prednisone Working / Worked
    • Open Degenerative Disc Disease

      I was dx when I was 25 years old.I had a car accident four months ago and now I have two bulging discs my back hurts a lot but the muscle spasms is what's bothering me

    • Open Food Allergies
      Type of allergy: Peanuts

      I've suffered from several food alleries since I was 2 years old.life threatening allergy to peanuts,sulfites,MSG.I'm allergic to wheat,eggs,milk,corn,soy....

      Treatments

      Avoid Certain Foods / Chemicals Working / Worked
      EpiPen Working / Worked
      Benadryl Working / Worked
      Atarax Working / Worked
    • Open Back Pain

      I was dx with DDD when I was 25 years old.I had a car accident 5 months ago and I have two bulging discs now

      Treatments

      Bedrest Working / Worked
      Chiropractic Adjustment Not Working
      Cortisone (Injection) Somewhat Helpful
      Flexeril Not Working
      couldn't take it
      Heat Working / Worked
      Hydrocodone Working / Worked
      Physical Therapy Somewhat Helpful
  • Friends


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