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  • About Me

    Image of DeafEskie

    DeafEskie

    Female, 43
    Houston, TX, USA
    Member since April 29

    • About Me

      Disabled since birth, I do not let my disabilities hinder my life. Hobbies include scrapbooking, cardmaking, quilting, reading, tv, being with family/friends and rescue work with American Eskimo Dogs.

      Disabled since birth, I do not let my disabilities hinder my life. Hobbies include scrapbooking, cardmaking, quilting, reading, tv, being with family/friends and rescue work with American Eskimo Dogs.

  • Recent Activity

    • Sorry, there is no activity in the My Activity feed.
  • Journal

    • Seems like all I do is vent here geesh....

      Mood June 6, 2009 1:07pm

      Whines.....man I feel horrible today.  I am starting to wish I had some good days but feel it will all be over fairly soon.  I think I am …

    • Upset frustrated depressed, what else?

      Mood May 30, 2009 12:06am

         Thats right....i am so ready to just CRY.  And I mean a REAL cry. Thats how FRUSTRATED I am. I don't even know where to start. …

    • bipap etc

      Mood May 11, 2009 7:00pm

      Don't know whether to growl, laugh, cry or scream.  Seriously.  I am starting to hate that bipap with a passion. I am gonna try to use …

    Read Journal

  • Hugbook

    Give DeafEskie a hug



    • Hug

      From Psorunfair June 17

      Hey DeafEskie, thanks for the message, I will check into that. At this point I would eat a spark plug if I thought it would help. LOL. I hope you had a good day and you be strong too.
      Your New Friend,
      Darrell

    • Hug

      From ElleG May 30

      Hey DeafEskie, we do share a lot in common. I live with my nose in a book, and I have far too many animals, most rescues. I'm embarrassed to say that I'm getting a new puppy in about a week--a West Highland Terrier. I became a member of the COPD group, because my husband has COPD (emphysema), and he had lung cancer (thankfully caught in an extremely early stage).

      I think you are very wise to research your condition. Doctors are so busy that they seem to welcome questions and suggestions. We're fortunate to have the internet for many reasons, but my favorite reason is the wonderful people I have met online, including you. Thank you so much for inviting me to be your friend.

      Elle

    • Hug

      From kimmie42 May 12

      hi,sweetie hope u dont mind me calling u that that is just how i am. hang in there it will get better just be urself and talk about what is bothering u and u will feel better.

    • I’m With You

      From LorainefromTakoma May 3

      saw your message. just wanted to say hang in there. i hated my CPAP machine at first but have stuck w/it, even if i stop using it some nites, go back to it, bcuz it DOES make a diff in how i feel and that is a good thing

    Read Hugbook

  • Goals

    Progress

    0 %

    Current Weight (Lbs)
    183
  • Support Groups

    • Close Sleep Apnea

      I am diagnosed with the floowing (a mouthful!): Obstructive Sleep Apnea (severity is at 35) and Narcolepsy, Psoriasis, Psoriatic Arthritis, Osteoarthritis, Fibromyalgia, Glaucoma, GERD, Schuermans Disease (severs Scoliosis/Kyphosis), Hypothyroidism, Premature Ventricular Contractions (an arrythmia) and more. Late manifestations of Congenital Rubella Syndrome.

      Treatments

      CPAP Working / Worked
      Having a LOT of problems with this, and this is WHY I joined the group in hopes that others might have some ideas or at least can emphasize with me and help me to be able to understand and even ACCEPT my treatment as I am having severe issues with acceptance--both physically AND emotionally....Insurance regulations (medicare) is NO Help either....Really need a lot of support with this... HELPPPPPPP!
      Lose Weight Not Working
      DId everything. Worked out. Excercised three days a week plus walk my girls (new addition) and even eat smaller meals I mean way smaller. No go. Am now taking a short break from working out at the gym but do need to get back to that.
    • Close Fibromyalgia

      My story is actually in my profile and on the Sleep Apnea group. I have had FMS/CMP since December 2003, not dx'ed until May 2005. Born disabled, I do not let my disabilities stop me...

      Treatments

      Heat Working / Worked
      LOVE hot packs.... really loosens up my muscles!
      Morphine Working / Worked
      Methadone 10mg, 2 pills, 2x a day
      Ultram Considering
      Tramadol. They want to change me over.....and dup the methadone....
      Zanaflex Working / Worked
      1 4mg pill, once a day (bedtime)
    • Open Chronic Pain

      Chronic Pain due to FMS/CMP/CFs and Psoriatic Arthritis as well as Schuerman's Disease which consists of a 90 degree C curve in cervical spine. OA in spine as well.

      Treatments

      Flexeril Working / Worked
      wrong nmed. Its zanaflex!
      Heat Working / Worked
      www.herbalwear.com They sell on ebay. LOVE their hot packs
      Methadone Working / Worked
      L O V E it
      Physical Therapy Too Soon to Tell
    • Open Psoriasis
      Affected Areas: Psoriasis of the Skin

      I have had Psoriasis and Psoriatic Arthritis for many years. Psoriasis since age 19--and Psoriatic Arthritis for ten years.

      Treatments

      Taclonex Somewhat Helpful
      Humira Working / Worked
      Recently upped it to one injection a week. helping MUCH BETTER! Psoriasis is now restricted to the back of my thighs and butt area....
    • Open Time Management

      Horrible at time management....... hoping that some info here can help me out.

    • Open Hearing Loss & Deafness
      Type: Sensorineural (Profound)

      Deaf since birth. Congenital Rubella Syndrome

      Treatments

      Hearing Aids Working / Worked
      Have had hearing aids since I was 14 months old.
      Sign Language Working / Worked
      Learned sign at age 17. Was raised orally & mainstreamed in public schools. Never went to a deaf scholl in my LIFE until I hit Gally..... :) PROUD TO BE DEAF and part of the DEAF community.
    • Open Narcolepsy

      Have TWO sleep disorders. Narcolepsy and Obstructive Sleep Apnea (newest dx).

      Treatments

      Dexedrine Working / Worked
      Worked for a while.....but we took me off of it because of the concerns related to my heart etc. Am doing VERY GOOD now with just Provigil alone.
      Provigil Working / Worked
      200mg a day. Working VERY WELL. Cannot take xyrem because I am on Methadone...
    • Open Hypothyroidism

      Among all my health issues is hypothyroidism

      Treatments

      Synthroid Somewhat Helpful
      Dr says its working. I believe its only somewhat helpful...because the weight is just NOT sloughing off. I am still a big huge blimp! Looks like there are med treatments I was NOT aware of......
  • Groups

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