Oh god.... sorry everyone!!!
March 6, 2009 3:02am
Oh my goodness. I haven't been on for a year. Sorry everyone! I've fallen back into anorexia, I'm not as bad as I was but I'm 6st 9lb …
star04
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About Me
star04
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About Me
I've been deaf since 2004 thanks to a tumour caused by NF2. I devoloped anorexia is April 07 and am now back to a healthy weight although I do miss my small frame :(
I've been deaf since 2004 thanks to a tumour caused by NF2. I devoloped anorexia is April 07 and am now back to a healthy weight although I do miss my small frame :(
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Interests
Reading, writing, watching TV and chilling (On the computer etc).
Reading, writing, watching TV and chilling (On the computer etc).
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Recent Activity
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Journal
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April 5, 2008 5:10am
Radiotherapy went well as far as I know. My surgeon is arranging my spine op so something tells me it'll be next month :( I feel soooooooo fat I …
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Journal Entry for March 7, 2008
March 7, 2008 8:23am
Radiotherapy on the 17th, am not looking forward for the docs to strew a frame in my head but no pain no gain, Il'd rather have radio then a head …
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Journal Entry for February 14, 2008
February 14, 2008 5:39am
Don't care what anyone says but today was my last day getting weighed 46kg. Doc thinks I'll be back in 2 weeks but it's finished now, …
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Journal Entry for January 24, 2008
January 24, 2008 10:30am
43.6kg.
I miss my anorexia :( Has this happened to anyone else?
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Photos
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Support Groups
Close Brain / CNS Tumors
Type: MeningiomaI have had 2 tumours removed from the base of my brain and one unsuccsessful one too. I've had one spine operation to removed a tumour too. Yeah, it sucks but it makes you stronger emotionally. Unfortuntly I have more brain operations to come. The treatment I recieve is pretty good and the doctors are great at answering my questions. The tumours have left me deaf, and I now have a catarac and I'm only 15! I also had a schwannoma.
Treatments
- Surgery Working / Worked
- It is the most awful thing ever. Words can't discribe. You just have to stay strong.
Close Hearing Loss & Deafness
Type: Sensorineural (Profound)I became deaf in 2004 from a tumour growing on my ear nerve.
Open Neurofibromatosis
My deafness was very rapid and I was accused of bahaviour problems till I was finally diagnosis with NF2 5 months later. This was in 2004. Never met someone with NF2...
Open Cataracts
I have a catarac caused by my condition. I would really appriciate it if some could tell me what to expect as I am worried? I am already deaf, I hope it doesn't mean I'll be blind!
Open Eating Disorders
Type: AnorexiaIt started around Easter and the weight came off really rapidly. I was only meant to lose a couple of pounds at first but I then couldn't stop. Now I'm stuck in a rut and am in a bit of a mess. Everything is very frustrating and I feel really bad! People think buying me sweets and things will help, but it doesn't it just makes me feel rude and crap because I won't eat it, I can't! So I wish they wouldn't, and left me be...
Treatments
- Dietitian Consult Somewhat Helpful
- It's useful but not exactly helpful.
- Group Therapy Somewhat Helpful
- Actually very helpful- better when it's just me and my councellor.
