-
About Me
sonny50
-
About Me
I was diagnosed with Interstitial Cystitis / Painful Bladder Syndrome on March 15, 2007. The pain started February, 2005 but it took this long to diagnose. I was brought into the OR and the urologist confirmed the diagnosis by way of a hydro in the OR and photos were taken. I still have the severe pain and I am looking for info and support.
I was diagnosed with Interstitial Cystitis / Painful Bladder Syndrome on March 15, 2007. The pain started February, 2005 but it took this long to diagnose. I was brought into the OR and the urologist confirmed the diagnosis by way of a hydro in the OR and photos were taken. I still have the severe pain and I am looking for info and support.
-
-
Recent Activity
- Sorry, there is no activity in the My Activity feed.
-
Journal
sonny50 hasn’t written any journal entries yet. -
Hugbook
Hug
Hi I was searching for info on Pamelor and I saw you take it for IC. I also have IC and IBS and my doctor prescribed it to me. I was wondering if you have side effects from it and how much you take for it to help.
Thanks Tori
-
Photos
sonny50 hasn’t uploaded any photos yet
-
Advertisement -
Support Groups
Close Interstitial Cystitis (IC)
I was diagnosed with Interstitial Cystitis / Painful Bladder Syndrome on March 15, 2007. I have severe painful bladder syndrome. My name is Susan
Treatments
- Bladder Distention Working / Worked
- This was done for diagnostic purposes.
- Bladder Instillation Working / Worked
- Yes, I use the instillations during severe flares and I get some reliefl
- Elmiron Working / Worked
- Pyridium Working / Worked
- as needed
- Pamelor Working / Worked
- Helps ease the pain at the base of the bladder and the chronic pelvic pain that the bladder seems to effect..referral pain.
- Sinemet Working / Worked
- This is the life saving treatment. Placing ice packs in the Perineal area. I stay in bed when I have severe flares and use ICE.
- Oxycodone Working / Worked
- I could not get through the day without these meds...even with all of the other treatments I listed...I still need the Oxycontin... 80 mg a day and 30 mg short acting when needed
-
Friends






