Hooray
September 24, 2009 9:02am
Happily, things are still going well and I'm loving every minute of it. Pain from physical problems is still there but much …
Progress
90 %
bionix
9:45am, June 9, 2009
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About Me
bionix
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About Me
The list is long so it's hard to decide which disorder to post under. I'm gonna be 65 this year and have had (and survived a brain tumor) more disorders than I care to think of. But... I've finally procrastinated long enough to finally write a more complete profile. It's not a pretty one, but it's mine. Currently, I have fibromyalgia; cfs and it's possibly worsened by the recent diagnosis of sleep apnea so I get even less sleep from wearing a cpap mask (under duress and much nagging from my husband. ; sciatica (ouch); ); diverticulosis or diverticulitis depending on the day; depression (probably enhanced by all of this); cns lymphoma (now 8 yrs in remission after a year of chemo and steroids); and most recently misdiagnosed with dementia. The symptoms are probably a long term result of the tumor. And...to add to the mix, my driver's license has been revoked so the things I so love to do like yard saling and shopping are curtailed if not entirely no longer available and probably won't be for a long time if ever. So...did I mention that I'm depressesd? I must have remembered that because that it has nothing to do with short term memory .But...on the lighter side, I've managed to maintain a sarcastic sense of humor, am married for 44 yrs; have 3 wonderful children; 4 of the most beautiful and smartest grandchildren in the world; and relaxed when I can be.
The list is long so it's hard to decide which disorder to post under. I'm gonna be 65 this year and have had (and survived a brain tumor) more disorders than I care to think of. But... I've finally procrastinated long enough to finally write a more complete profile. It's not a pretty one, but it's mine. Currently, I have fibromyalgia; cfs and it's possibly worsened by the recent diagnosis of sleep apnea so I get even less sleep from wearing a cpap mask (under duress and much nagging from my husband.
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Interests
beading, antiquing, collecting, reading, learning, meeting new people and talking incessantly
beading, antiquing, collecting, reading, learning, meeting new people and talking incessantly
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Recent Activity
November 9
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bionix gave Maryca a chicken soup 11:16am
If chicken soup is Jewish penicillin, then here's a great big bowl for you....hope it works!…
November 8
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bionix gave crazybeautifulxo a prayer 11:41am
Here's a prayer. Please use it as and when needed!…
November 6
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bionix gave mindlight an I'm with you 6:40pm
Thanx for sharing your world. It's so nice to not be alone. I'm getting bored of me especially when I…
October 19
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bionix gave Pitterpat a chocolate 4:01pm
Thank you! This really does seem like the right place to start healing. Lots of people like you that…
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Journal
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More good news
September 12, 2009 10:39am
One more fantastic new part of my life. So much of my depression and psych problems has been lessened by new friendships that have improved so much …
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MISDIAGNOSIS
September 12, 2009 10:36am
HOORAY! The diagnosis of dementia was NOT CORRECT!!!! Not a surprise to me since I always knew it wasn't that but more chemo brain. It's just …
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Overwhelmed
July 30, 2009 5:30am
Well, it's 5:30 a.m. and sleep doesn't seem to be an option. I'm mostly frustrated becauase there's just too many things going …
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Hugbook
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Prayer
I like your idea of a prayer chain. Sending out prayers for you and those like us that we get well soon. Will keep you in my prayers
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Thanks
Thank You. Hope you have a great day. Hugs
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Hug
Yes this has been nice...and I really am looking forward to getting to know more about the ppl. Of course I probably will get them mixed up a bit but.....lol that's our path I guess
ty
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Flower
Sorry I've only been on here as Maryca since May of 2008. Sending prayers that you find the person you are looking for. Hugs
Hug
thank you for reply it really helps to know i am not alone by the way how much klonopin u take.
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Photos
bionix hasn’t uploaded any photos yet
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Support Groups
Close Diverticulitis
have had diverticulosis for many yrs. now it is diverticulitis and it hurts!
Treatments
- Cipro Not Working
Close Brain / CNS Tumors
Type: OtherI survived cns lymphoma about 8 yrs ago. In a yrs time had about 16+ high dose chemo treatments and lots of steroids. The worst is over but there are some surpising after effects.
Treatments
- Chemotherapy Working / Worked
- It worked but there is frontal lobe damage. Wish I'd known more before.
Open Tay-Sachs Disease
I'm a former member of National Tay-Sachs and Allied Diseases Organization. My neice had Neiman-Pick disease and lived to be 10 yrs old, an amazing feat. My son is a carrier which we found out thru amniosyntosis 35 yrs ago.
Open Chronic Fatigue Syndrome
Diagnosed about 30 yrs ago with cfs and fibromyalgia back when they were supposedly all in your mind. Recently found out that I have sleep apnea and wonder if that could explain all the fatigue and brain fog of cfs.
Treatments
Open Fibromyalgia
I've had fibro for about 30 yrs since it was considered an imaginary condition. The good days are great and the flareups are unbearable. Any other health problem is heightened by fibro. Some antidepressants help but only temporarily. In bad times, even a light touch to any part of my skin is very painful, a breeze can actually hurt
Treatments
- Cymbalta Somewhat Helpful
- ok for a while and then developed sensitivity and experienced a rage.
- Effexor Not Working
- Heat Somewhat Helpful
- sometimes but not always
- Lyrica Not Working
- HORRIBLE side effects including worsened depression, lethargy, drugged sensation and inability to function at all. Looked pale and grey until it was stopped and then immediately sprang back
Open Bipolar Disorder
Until finally diagnosed about a yr ago, I knew something wasn't right but just didn't know what. My moods can range from placid to depressed to more depressed to more hostile. Don't really have manic episodes, fibro stands in the way of much action. It's very hard to explain the pain of this disorder to anyone who has never experienced it, and the frustration as well.
Treatments
- Lamictal Working / Worked
- take 2x day and works well so far
- Lexapro Working / Worked
- take 10 mg a.m. and 20mg at p.m. Seems to be working
- Clonazepam Working / Worked
- So far so good. Helps with depression and uncontrollable crying spells.
Open Dementia
This is a recent diagnosis which I'm still having a hard time accepting. The stigma attached to the name is the worst hurdle for me and I can't bring myself to share this with my friends or children. My husband kind of understands but he's still in a lower stage of denial. I'm comforted by the thought, accurate or not, that this is mostly the product of sleep apnea, brain cancer, about 16 doses of chemo and other pain and depression issues. I'm depressed!
Treatments
