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  • Flowers

    JackiRenee (11/22/09)

    hi,
    Oh, i'm so glad your going to see your Son on Thanksgiving...thats special!
    You have Two sons.....one lives in CO and the other lives by you ...right?
    Will you see them at Christmas?
    I tried to keep busy today decorating for Christmas and even wrapped a few gifts...lol!!
    Marvs feeling a little better today but the pain meds have given him a terrible stomach ache.....he has to take laxatives and his stomach really hurts.
    How many days ago did that lady have her surgery?
    He was a little extra grumpy today.....I just stayed upstairs and kept busy..lol!
    Are you still having alot of spasms?
    My bladder has been having spasms alot lately.....I hate that feel!
    Did the valium help you?

    Take care~~~~
    HUGS~~~
    Jacki


  • Flowers

    JackiRenee (11/21/09)

    good morning:
    How are you feeling today?
    I'm slightly better.... just need to watch the foods and do deep breahing today.
    Boy, your Husband is working alot of Hours....NO FUN!!!
    My parents are having Thanksgiving.....but only about 8 people this year.
    I will have Christmas morning here.
    I'm hoping Marv will feel like going to their house.....his pain level is better this morning.
    It's cold and raining here....whats the weather there?


  • Hug

    JackiRenee (11/19/09)

    hi,
    I'm glad you had a nice trip...Sorry the weather was so bad.
    Marv had his surgery on Tuesday and is doing okay.....he's in alot of pain but takes percocet every four hrs.
    I'm in a flare up but thats NO surprise with all the stress....my bladder is a wreck and the tmj is bad too.... but i'm getting through the day with prayers.
    What are you doing for Thanksgiving? are you cooking?


  • Flowers

    lajeana21 (11/09/09)

    Thanks Lynn!

    I hope things continue to go well for you. I'll keep you posted about my new doctor and how things go. I really wish there was one thing that could help everyone. I hope you have a great day! :)

    Laura


  • Prayer

    JackiRenee (11/08/09)

    I will say prayers for you....I hope you will feel good and have a nice visit.
    Take care~~~~


  • Prayer

    JackiRenee (11/08/09)

    thanks!!!
    I hope you feel better soon also!
    I see your back on facebook- is it okay to send messages there once in a awhile?
    Thanks for the support!
    HUGS~~~
    Jacki


  • Flowers

    JackiRenee (11/08/09)

    hi,
    I've always blamed the fibromyalgia on the muscle spasms .....in the bladder,rectum,and lately my face.....the pain shoots into my eye,nose and teeth....i had a major anxiety attack this morning.....because I have bladder spasms going on and my face pain is out of control.....it's making me think i need a rootcanal...i went to the dentist two weeks ago and nothing showed up in the xrays but the pain is still there.I'm sure its the spasms causing the nerves to flare.
    It's sooooo scary,i feel like i dont know what to do.
    then the anxiety starts.
    If I keep going back to the dentist he will send me to a endontist and they always think I need root canals.
    I just can't stand all this pain.
    I know what you mean about the roller coaster.....it's tough having a sress free day when your always waiting for the next spasms to happen.
    I wish I could make all of our pain go away..... and the depression and anxiety.....it's horrible.
    Sorry to be so down today...... it's been a rough morning.
    Thanks for letting me vent..lol!
    HUGS~~~~
    Jacki~~~


  • Gold Star

    JackiRenee (11/07/09)

    hi, how are things going?
    Did you get all your thyroid and other test back?
    My Husbands surgery is Nov 17.....Workmans comp okayed for the surgery but we don't know about full benefits till after the surgery...ahhh!
    What have you been up too?


  • I'm With You

    katster (11/07/09)

    Oh that sounds awful! I have aching in my rectum sometimes but it's been happening since I was very very young and I have IBS... but I can imagine the type of discomfort you're in and that's horrible. I actually JUST (like 10 min ago) read about it in a book that my doc and I are reading together called A Headache in the Pelvis and it sounds again like a complicated hard to treat condition like IC. I really hope that within this decade they figure out what is causing all of these problems and how to help them to the point of full functionality. Anyway, I hope that the neurontin helps eventually... I was on that for endometriosis pain and it completely took it away but the side effects were unbearable and I was losing clear vision altogether :(. I don't know how long you've been taking it but sometimes it takes a while to build up in your system before it works. Let's hope. :)


  • Hug

    katster (11/07/09)

    Hi, thank you for accepting. I have seen some of your posts and find them quite helpful. I took the advice you gave to another girl and watched the videos on the ic network and I understand my flares better now. What is the levator anti syndrome? And no, I'm not able to manage my IC all of the time and get flares (muscular) frequently. I saw my doctor yesterday and he thinks I have fibromyalgia as well... so we'll see what the blood work shows. How are you? What would you say that your worst symptom is of IC? Take care. :)

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Total Hugs


100 Hugs

31 Rays of Sunshine

24 Flowers

20 Rainbows

14 I'm With Yous

9 Prayers

6 Gold Stars

5 Good Lucks

2 Get Well Soons!

2 Moments of Peace

2 Miss You

1 High Five

1 Chocolate

1 Sorry

1 Chicken Soup

1 Thumbs Up

1 Funny Face
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297 Hugs
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