tbellagirl's Journal

 ok so b/c my little girl has special needs I have to take her to UCSF on Mon. and since I have M.S.   I am inclined not to drive there by myself and no one is available to go with.
Surprisingly enough her dad is going to go..... now I am contemplating what a long Frikin drive its going to be with him. Its like 5 minutes is a long time with him . so this trip will seem like endless hours of walking on egg shells. I regret asking him even though shes his daughter too and he has rarely stepped up to the plate. They'll let us know if she will have yet another eye surgery... I feel like I should be glad just to get her there and not be worried about the fact that its him taking us but.... easy to say hard to do at times.

She is this amazing human being .... shes been through a lifetime of surgeries and difficulties and health problems and she says... "mommy i love you from here to the ocean to the sky to the mountains and back here again."  She is the greatest thing either of us ever did !!