lies
July 27, 2009 7:50pm
Today has been a very hard and painful day. The last few weeks I have been very sad and filled with anxiety and pain. I keep thinking of all …
tbellagirl
11:28am, July 20, 2009
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About Me
tbellagirl
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surgery
July 6, 2009 12:59am
well my little girls eye surgery is done.... It as always , is hard to see her in pain. She is so brave and so strong just watching her makes my …
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what a sap I am
June 12, 2009 8:25pm
Good Lord what a sap I am... I took my daughter to see the disney movie "up" thinking well, she will have eye surgery soon and might …
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Journal Entry for June 11, 2009
June 11, 2009 1:27am
I took my daughter to ucsf and yes she will have surgery in july on her eye... again. She is such a brave and sweet soul. I find myself missing …
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yikes
May 9, 2009 12:21am
ok so b/c my little girl has special needs I have to take her to UCSF on Mon. and since I have M.S. I am inclined not to drive …
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Moment of Peace
just wanted to say hi from roseville ca
Rainbow
Hoping you have a better day today...
Rainbow
HOW ARE YOU AND DAUGHTER DOING AND FEELING?Please take care,CFS-FIBRO-Ed
Get Well Soon!
Hi DeAnna my sister in law has MS too. Such a terrible, unpredictable ailment! She recently had a detached retina because of it and had to undergo emergency surgery. I fear one day she will need to use a wheelchair.
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Prayer
Just read the journal. Hope your daughter has a speedy recovery! My prayers are with you.
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Close Multiple Sclerosis (MS)
Type: Relapsing-remitting MSHi, my name is DeAnna and I am fairly new to M.S. Most of the time I am overwhelmed by it all and just focus on choosing to just get through today. I have 2 adult children and 1 nine yr old daughter. She was born with a chromosome disorder.(our youngest and 4th child passed from a similar disorder) I am no longer married... seems that some people draw together in difficult times and some aren't able to cope with it all. So , now I am trying to focus on not only good health but good attitude.
Treatments
- Rebif Working / Worked
- I had a difficult time with the side effects. The flu like symptoms get old.... fast. I recently had an MRI of the brain and have a lot of lesions. The neuro wants to change me to Copaxone, but i am not sure. Seems that he doesn't think the Rebif is slowing things down. the shots arent hard to give myself but burn a little and leave red blotches for a few days that fade just in time for another round!
- Provigil Working / Worked
- I like the provigil. The only side effect was when they gave me an anti depressant with it. zoloft yikes!! made me crazy... otherwise wout that the provigil helps me alot.
Close Bereavement
Type: Loss of a ChildTreatments
- Crying Working / Worked
- one day i started to cry .... and I just couldnt stop. I cried because i had buried my daughter. I cried for every thing she will never be or see or feel and everything i will never be or see or feel with her. I cried over the guilt, the fear, the knowledge that our lives would never be the same again and I was right about that. It never gets any better you just learn to live with it .I cried myself right into the hospital... therapeutic I guess.
- Keeping Busy Working / Worked
- Prayer Working / Worked
- Talking Working / Worked
- Time Working / Worked
Open Breakups & Divorce
I have been married 10 excruciating years we are divorcing and after all the lies and loss i can't figure out why it still leaves this horrible aching pain. In the first 3 yrs we had a dtr with disabilities, our youngest dtr passed away and he became a liar and alcoholic and I was diagnosed with multiple sclerosis.... we never had a chance I just didn't get it. We aren't even mean to each other.... I am so ridiculously sad.
Treatments
- Forgiveness Working / Worked
