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  • About Me

    Image of ThisIsWhoIAm

    ThisIsWhoIAm

    Male, 36
    charlotte, NC, USA
    Member since April 21

    • About Me

      I live in NC,have two children,1 birth,1 through marrige,love writeing,My kids are my life,

      I live in NC,have two children,1 birth,1 through marrige,love writeing,My kids are my life,

  • Recent Activity

    • Sorry, there is no activity in the My Activity feed.
  • Journal

    • I hate me

      Mood June 7, 2009 10:11pm

       

         Somepeople would say it could be worst,but do they avoid mirrors.Feel pain of liveing with bumps all over.Feel the hurt from …

    • stares

      Mood April 25, 2009 10:37pm

      My biggest problem.I have a few bigger bumps on my head.I always wear a hat when i go out to try and hide them.It's hard in places like church …

    Read Journal

  • Hugbook

    Give ThisIsWhoIAm a hug



    • Ray of Sunshine

      From sunangel June 8

      Hi,
      I do not have words of comfort but you have found a great group of folks. Have you shared your story with the other NF boards? Team Inspire and Children's Tumor Foundation? Both are great communities as is DS.

    • Hug

      From Marah June 8

      I know how you feel.

    • Hug

      From twmbabec June 8

      Hi ThisIsWhoIAm... I am a new user on here, and I also have NF.

    • Little Love

      From kjl1951 June 7

      :o) Hearing from friends is the very bestest thing in the whole widest world. :o)
      just me

    Read Hugbook

  • Support Groups

    • Close Neurofibromatosis

      I've notice my bumps mostly in school,which was exstreamly hard.Gym was the worst.I've never taken my shirt off in public even barely take it off for my wife.If only people would understand,and children wouldn't stare and say "he got bumps"

  • Friends


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