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miamode 
11:53pm, April 21, 2009
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miamode
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Little Love
I understand your pain. I have been dealing with epilepsy for 33 years. It is not fun amongst all my other health issues. i am here for you anytime. I have grand mal seizures and have been in the hospital to many times to count. My thoughts and prayers go out for you. i wii keep you in my daily prayers. Live life to its fullest. Try not to let it get you down. XOXOXO
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Welcome to daily strength.
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Close Food Allergies
Type of allergy: Other FoodsI am allergic to almost everything...foods, medications, sulfites, soaps, etc. I also live with several autoimmune disorders...celiac disease and crohn's disease, among others. Looking to hear others stories who have lived a full life around their hypersensitivities.
Treatments
- Avoid Certain Foods / Chemicals Working / Worked
- works but leads to malnutrition that I have to balance with a lot of supplements and liquid diets.
- EpiPen Working / Worked
- anaphalaxis to Bactrim...worked. Have heart problems now so can't get another epi-pen.
Close Celiac Disease
Treatments
- Avoid Certain Foods / Chemicals Working / Worked
- Avoiding to foods I am allergic to and sticking to a low fiber diet to reduce pain.
- Casein-Free Diet Too Soon to Tell
- just in beginning of this process...will see
- Dairy-Free Diet Too Soon to Tell
- Was allergic to dairy as a kid...don't know if I still am...waiting to have 3rd allergy skin test. For now am cutting out things that may aggravate my condition.
- Gluten Free Diet Working / Worked
- Has helped a great deal but will take some time for my body to recover from the damage to my intestines.
Open Crohn's Disease & Ulcerative Colitis
I was just diagnosed this week along with celiac disease.
Treatments
- Avoid Certain Foods / Chemicals Too Soon to Tell
- Dietary Modification Working / Worked
- very careful diet...avoiding allergenic foods and trying to get all my nutrition from what is left.
- Probiotics Working / Worked
- keeps me form getting digestive system yeast infections
Open Epilepsy & Seizures
Diagnosed June 2008 with epilepsy. Trying to balance that with severe allergies, autoimmune disorders, and cardiac arrhythmia
Treatments
- Ativan Working / Worked
- only in emergency situations
- Depakote Somewhat Helpful
- worked on the seizures but gained 30 pounds in a few months and developed hormonal problems
- Diastat Working / Worked
- great in emergency situations for me
- Keppra Working / Worked
- Keppra XR has been the best for me. Haven't gained any weight on it and doesn't effect my heart or hormones either. Praying it continues to work with the minimal side effects (a bit sleepy). Good one for me
- Topamax Working / Worked
- ended up with kidney stones and heart problems...actually got more migraines on this med too
Open Acne
Have had acne for over 20 years (12 to 33 yrs old). Recently found out I am a staph carrier and I have celiac disease. Cutting out gluten and using Bactroban at night has about cleared me up.
Treatments
- Benzoyl Peroxide Somewhat Helpful
- worked to a point but left me with red, dry and irritated skin.
- Retin-A Somewhat Helpful
- worked some but left me with skin that was worse than the disease
- Bactroban Working / Worked
- Bactroban and a gluten free diet has done what nothing else has in 20 plus years.
