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  • About Me

    Image of Jenidawn

    Jenidawn

    Female, 35
    USA
    Member since April 18

    • About Me

      Mom. teacher

      Mom. teacher

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  • Support Groups

    • Close Narcolepsy

      Treatments

      Adderall Somewhat Helpful
      Misdiagnosed as ADHD, but it helped because it was really narcolepsy. Felt better, but didn't last very long. grouchy, impulsive, couldn't concentrate.
      Dexedrine Somewhat Helpful
      Misdiagnosed as ADHD, but helped anyway because is was really narcolepsy. Felt better, but made me grouchy and erratic.
      Provigil Working / Worked
      Works to keep me awake without turning me into a spaz. Some headaches, and must be taken on completely empty stomach. Kept me from falling asleep, but still felt tired.
      Xyrem Not Working
      Totally hate Xyrem. Makes me extremely depressed, nauseous, shaky, lethargic. Doesn't put me to sleep, I just feel woozy. Sometimes still feel impaired in the morning. Worse than narcolepsy for me. My 4yo said, "you don't take your yucky medicine, and FLICK you're NICE." Haven't taken for 4 days and feel better than ever.
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