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WolfAngle
Female, 21, Sydney, AUS
"in rehab still. scared for kazz, not scared but really scared"
3:02am, October 15, 2009
Journal Entry for July 15, 2009 Mood
Wednesday, July 15, 2009

kaz is at  home! she went home yesterday and i'm very proud of her, well very happy actually. she always manages to pull through but she does not have luck on her side. poor thing has to have root canal for an infected tooth and it was thanks to the EDS. so my first question i asked my doctor who is now studying EDS so he can help me, i asked him about oral an such with eds, might as well know, cant do no harm an he said that infections in the teeth are very common among the vascular types. an if kaz is on the high scale of vascular then she's likely going to be having a lot more dentist appointments as a hefty price as well. but other wise she has her laugh back and although she is in a lot of pain she's laughing and back to her wickedness plus her spark for life and that. she's taking more care and accepting things, which is good. i should be lucky that although i have the vascular as well its not bad like hers, however my hypermobile is a lot worse then hers by far, we're both on the high scale of that one but i've got more then the eds, lol.

 

so i've finally managed a decent nights sleep. i've had a wonderful day today, well this afternoon as i spoke to kaz for a while, lucky she never had to waste her credit. she only has enough for one sms and i think she's saving it for someone. i dont know who. like i said she tries to keep me away from certain people in her life. no idea why  but its okay. an she's taken an interest in to some of jasons family religion so i guess thats good, they believe in the five elements, spirits, after life, reason your put here, an finding inner peace and really enjoying life. an other strange things. i couldn't understand it and i was sorta rejected after doubting it so i've been banned going back, lol. which suits me just fine.

 

i was wondering which side of the family i got the EDS from since its a gene thing and it has to be past down from family member to family member and i found out that two uncles died suddenly, unxpected, the doctors said it was due to an artery bursting in the heart. an my moms mom is very flexi. i mean she's 97 years old and can still arch her back and pull her thumb down flat on her arm! an the doctors say we will stiffen but my granny always says they dont know anything till they've experienced it. she use to do well in dancing and gymnastics but she suffered a lot of injuries and had to stop but she developed artheritis in those joints from dislocations and well old age in general. other wise she's very healthy. i got the eds from both my family, my dad is the carrier of the vascular and my mom has some hypermobility in her arms an so she passed that part on to me. i of course still have a huge family history to look in to. so i can make sure both of them gave it to me and it would probably be best they be tested, lol, but i dont think that will be easy as both parents share a fear of needles and dad refuses to go to the doctors, lol.

 

UPDATED GOALS

start enjoying life

Progress 10%

Encouragements: 0

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