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  • About Me

    Image of sandym

    sandym

    Female, 60, Married
    DeSoto, MO, USA
    Member since April 8, 2007

    • About Me

      I was just diagoned with Lupus, so I need to learn about it. I will just add it to the mix of everything else I have.I am disabled with RA and OA, have had 2 spinal decompressions and fusions, . Just recently diagnosed with spinal stenosis, cervical and lumbar. In October of '08 I had anterior cervical discetomy with fusion. ( neck surgery)I also have glaucoma, and diabetes. I love being with my grandchildren, they are my lifeline, all 10 of them. Just trying to come to terms with all the changes in my life and dealing with them. I have a wonderful husband who is my rock, and is trying to understand all that I am going through.

      I was just diagoned with Lupus, so I need to learn about it. I will just add it to the mix of everything else I have.I am disabled with RA and OA, have had 2 spinal decompressions and fusions, . Just recently diagnosed with spinal stenosis, cervical and lumbar. In October of '08 I had anterior cervical discetomy with fusion. ( neck surgery)I also have glaucoma, and diabetes. I love being with my grandchildren, they are my lifeline, all 10 of them. Just trying to come to terms with all the changes

    • Interests

      reading, gardening, my pets, auctions, junk hunting, and most of all my grandchildren

      reading, gardening, my pets, auctions, junk hunting, and most of all my grandchildren

  • Journal

    • This entry is private

    • This entry is private

    • This entry is private

    • This entry is private

    • I AM IN A PICKLE!!

      Mood October 22, 2009 11:48am

      Ok I am suppose to get those shots today in my hips,  BUT I took my lyrica, and I no longer hurt!! I haven't had any lyrica for quite some …

    Read Journal

  • Hugbook

    Give sandym a hug



    • Chocolate

      From janey Today

      some chocolate to get you thru the week...have a happy turkey day! hugs...

    • Hug

      From lycesq Today

      Sandy - around my house, it would be cats. And you know what, you are right - we would have a great time! My crew and I know how to enjoy ourselves...

      Hope your weekend is great!

      Lynne

    • Hug

      From lycesq Today

      Sandy - around my house, it would be cats. And you know what, you are right - we would have a great time! My crew and I know how to enjoy ourselves...

      Hope your weekend is great!

      Lynne

    • Hug

      From janey Friday

      have a good weekend...and i have missed you too!!! hugs

    • Hug

      From snooksmama Wednesday

      I DO have a handle on my belly - TWO of them lol! I am so so sorry to hear that you have lupus. That might explain why you have so much going on! Maybe a change in meds is in order and will help you feel lots better? I sure do hope so! Keep the positive attitude, dear and also please keep me posted on how you are doing. I'll be praying...

    Read Hugbook

  • Support Groups

    • Close Rheumatoid Arthritis

      I have severe RA, and OA through out my body. I recently was taken off Remicade and methotrexate for treatment and put on Orenceia. I also have had two spinal fusions for spinal stenosis, and have recently been dx with stenosis of the cervical area. I have 11 beautiful grandchildren, I am limited on what I can do around the house and in the yard. Some times I feel things popping in my back and hips when I walk, at times my legs buckle and I feel like I will fall.

      Treatments

      Arava Too Soon to Tell
      Celebrex Working / Worked
      worked for a while, no longer using
      Chiropractic Adjustment Working / Worked
      worked for a while
      Folic Acid Working / Worked
      Humira Not Working
      did not work
      Methotrexate Working / Worked
      didn't help
      Orencia Working / Worked
      This is working, I have had allergic reaction twice from it. Hives, but got them under control.
      Prednisone Working / Worked
      feeling better with it. Small daily dose
      Relafen Working / Worked
      quit working
      Remicade Not Working
      quit working
      Tylenol Not Working
    • Close Chronic Pain

      I have had chronic back pain for 30 yrs, plus RA, and OA. I also had two spinal fusions with hardware placement. At times when I walk or move just right it feels like something is popping or moving.Most days I can stay positive, but other days I feel like I can't take much more.

      Treatments

      Lyrica Working / Worked
      have had severe burning pain in both hips since my first sipnal fusion in 1998, this stuff has taken away all of that pain, it started to work immediately. I am now able to walk without my hips burning
      Chiropractic Adjustment Working / Worked
      Flexeril Working / Worked
      quit wworking
      Heat Somewhat Helpful
      Hydrocodone Working / Worked
      keeps everything to a dull roar
      Lidoderm Working / Worked
      helps alot
      Lyrica Working / Worked
      burning pain in hips is gone
      Naproxen Working / Worked
      quit working
      Physical Therapy Not Working
      what a joke
      TENS Not Working
    • Open Arthritis

      have both RA & OA, on remicade and methotrexate for RA, but not much for the OA, only feldene, and tylenol

      Treatments

      Daypro Not Working
      Feldene Not Working
      eases the stiffness in the morning. No side effect, and seems to help
      Ibuprofen Working / Worked
      stomach problems
      Tylenol Somewhat Helpful
    • Open Glaucoma

      I was diagnosed with glaucoma last year. I also have other issues, RA,OA, and back surgeries

      Treatments

      Lumigan Working / Worked
      no longer using
      Xalatan Working / Worked
      hated eye drops, very expensive
      Laser Surgery Working / Worked
      painless procedure 10 minutes per eye. No moreeye drops pressure had dropped dramically
    • Open Back Pain

      back pain for 30 yrs. 2 fusions with good results, Chiro adjustments with good results Just recently dx with stenosis again! ESI injections to be scheduled

      Treatments

      Chiropractic Adjustment Somewhat Helpful
      works
      Epidural Injection Considering
      had tehm 15 yrs ago, now considering them again for the stenosis above my fusions
      Hydrocodone Somewhat Helpful
      keeps the pain at a low roar
      Ibuprofen Not Working
      Physical Therapy Not Working
      what a joke
      Traction Not Working
      Spinal Fusion Working / Worked
      two fusion, 1998,2001, now having touble with vertebrae above the fusions, they are starting to separate, and causing alot of pain
      Lidoderm Working / Worked
      works some
    • Open Diabetes Type 2

      Diagnosed a few years ago. My docotr has added meds that have caused weight gain.

      Treatments

      Actos Somewhat Helpful
      weight gain
      Glipizide Too Soon to Tell
      gaining weight
      Lantus Working / Worked
      Metformin Not Working
      NovoLog Working / Worked
    • Open Lupus

      Today I was diagnosed with lupus, so I thought I would drop in and get some information on it.

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