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  • About Me

    Image of Humunculus

    Humunculus

    Female, 25, Married
    Fairveiw, PA, USA
    Member since April 17

    • About Me

      Graphic artist

      Graphic artist

    • Interests

      Art, Voice, Photography, Guitar, Animals, Philosophy, Religion, History, Literature

      Art, Voice, Photography, Guitar, Animals, Philosophy, Religion, History, Literature

  • Journal

    • This entry is private

    • This entry is private

    • This entry is private

    • This entry is private

    • This entry is private

    Read Journal

  • Hugbook

    Give Humunculus a hug



    • Hug

      From AliceOnWheels Saturday

      i wish we cood find some way 2 get 2 chat

      hugs

    • Good Luck

      From samzlost Friday

      Hope that your day goes well, keep us updated!

    • Get Well Soon!

      From samzlost Wednesday

      I hope they find some answers so you can eat! Hang in there!

    • Sorry

      From hunterD November 1

      NOTHING LIKE THAT EVER HAPPENED TO ME. MY BROTHER IN LAW WAS JUST THIS LAST WEEK, DIAGNOSED WITH GASTRIC COLITIS, WHERE EVERYTHING YOU EAT ( SORRY TO BE GROSS ) COMES OUT IN 15 MINUTES AT THE OTHER END. HE HAS NO LINING IN HIS LARGE INTESTINE, IT WILL GROW BACK IN A MONTH. HOPE YOUR DR FIGURES IT OUT. LOVE YA, DAVE

    • Little Love

      From hunterD October 31

      in spirit of the day, did you try eating any candy? have you just lost your appetite, or can you keep nothing down? love ya, dave

    Read Hugbook

  • Goals

  • Support Groups

    • Close Multiple Sclerosis (MS)
      Type: Relapsing-remitting MS

      It's been a long time since I felt "well", but for years no one believed my deterioration. Being diagnosed in Oct. 08 was a great thing for me--finally I had a name for my pain.

      Treatments

      Avonex Working / Worked
      Got my year MRI to check the progression, and so far the MS is "stable". I haven't gotten any worse, so I guess I can safely say this is working.
      Baclofen Working / Worked
      This works really well for spasticity. I take it before bed sometimes, mostly for my left leg which seizes up occasionally.
      Neurontin Working / Worked
      I take a lot of this to keep the pain down. I'm supposed to take more, but it makes me really tired so I haven't tried that yet. I live with a bit of pain to keep my head focused.
      Physical Therapy Considering
      I went a couple times, but not only was it expensive it just didn't feel like it was doing anything except exhausting me.
      Prednisone Working / Worked
      Seems to really help with the sickness related to the injections. I only had to lay down for a couple hours instead of all day.
      Solumedrol Working / Worked
      I took three infusions of Solumedrol before beginning my therapy with Avonex. It really seemed to help calm the almost constant flares I was having.
    • Close Bereavement
      Type: Loss of a Parent

      Both of my parents are dead. my mother when I was 13, and my father when I was 23. I miss their guidance, and their belief in me.

    • Open Bisexuality

      Normally I wouldn't mention such a thing, but more awareness and tolerance for alternative sexual identities is needed. I'm bi and no one really gets it...gays think I'm too scared to be gay, and straights think I'm confused. I know who I am.

    • Open Loneliness

      I've never gotten along with anyone very well...and I have very few friends that all live about 7 hours from me, including all of my family. It gets lonely. The MS makes it so that I can't get out at all, and my husband--though he's my best friend in this world--work a lot to try and support me so I spend a ton of time alone. I like it...but then sometimes it gets really depressing.

  • Groups

  • Friends


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