sara1990

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  Hug

  From LynnAnn October 25

  Sara,
  My heart goes out to you.
  Firstly because you are so young to be dealing with
  this.Secondly,it is a monster.
  You ask how I stay optimistic.Believe me I have many
  many down days with this.But maybe because I am in
  a different stage of my life,I am able to cope a little
  better.I have done everything already,good childhood,
  fun teen years,a little college,marriage,kids,and now
  grandkids.I have had many wonderful experiences in life
  pain free.I want the same for you!!!
  But even though I am fairly new to this disease,I refuse to stop living my life to the fullest.
  .I am also about as proactive as you can get with
  this disease.I read everything I can get my hands on
  concerning this illness.If you are in contact with
  a member called ICish,please join her new group online
  There are so many coping techniques to make this
  managable that don't cost you anything but your time.
  Many,many people have been able to go into remission
  and you can too if you just get the right help.Please
  check out ICish group.I believe it is called "IC Anonymous Meeting Place"She will answer any questions
  you might.She states that our bodies will heal themselves if we help them along with,deep breathing,
  stretching,relaxation techniques and the right diet.
  Will it happen tomorrow,No,it will take a long time,but
  Sara it is worth it.You can't go on like this for the
  rest of your life.There are some drugs out there that might help you get to remission.Please don't give up
  Sara.I am sorry this is so long,I just feel your pain
  and want to help in any way I can.
  Hugs,
  Lynn

• 

  Hug

  From LynnAnn October 21

  Sara,
  I read your recent entry on DS about discomfort in the
  bum area.I was wondering if you are experiencing what
  I am.There is a syndrome called Levator Ani syndrome
  that you might want to google.It can go hand in hand with IC.It is all part of the pelvic floor muscle system
  which can go into spasms therefore causing burning,
  pressure and pain.It is about as hard to treat as IC
  I am presently going to a Physical Therapist to try and
  relax this levator muscle,which is the biggest muscle we
  have in the pelvic floor.If you have any questions about
  this,check back with me and I will pass along all the
  info I have learned.
  Take care,
  Lynn
  

• 

  Hug

  From LynnAnn August 16

  HI Sara.
  Thinking about you and hoping you are doing okay!

• 

  Hug

  From LynnAnn August 3

  Hi Sara,
  My only treatment is diet,Physical Therapy.Meds include
  Elmiron and pyridium for serious flares.I really think
  this diease is has a lot to do with some weakness in
  our central nervous system.Something is out of kilter.I do know
  that here in the States they have really stepped up
  research on this disease because so many are now becoming afflicted.You can bet the drug companies are
  on this as they are the ones that will profit the most.
  If I hear about any new treatments,I will pass it along
  to you and you can do the same for me.
  Please stay in touch!
  Lynn

• 

  Hug

  From LynnAnn July 30

  Hi Sara,
  I have medical issues every which way.IC,pelvic floor
  dysfunction,rectal spasms,and female problems.Every day
  is different isn't it.Today wasn't so bad but I can bet
  you tommorow will be a whole different story.I try and
  watch my diet most of the time.I go to PT once a week
  and I try to stay calm and relaxed,but it is a constant
  job to keep up with all of this.I don't work,but I
  feel like I have a full time job just trying to get
  somewhat comfortable.Do you agree?
  Anyway it was great to see your email.I have been
  wondering about you.Please let me know about your
  struggles with this lovely disease!

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