Motor Cortex Stimulator
October 9, 2009 11:27pm
Took a trip to Chicago last week to see Dr. Levy at Northwestern Univ. Hospital. He said my true dx is not "atypical TN" but …
amymzj
10:48am, October 20, 2009
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About Me
amymzj
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About Me
Trigeminal Neuralgia since 1999 (possibly since 1987 :( Occipital Neuralgia (confirmed) since 2002 after MVD. Anethesia Delorosa after MVD of Jan 2002 (not necessarily because of surgery but likely, ask me if you want more detail... ) Migraine sufferer for 25 years. Tried EVERY kind of med and therapy... I'm a walking encyclopedia of medical info now :( Did Peripheral Nerve Stimulator trial recently.. (Aug 09) Went very well. Must wait for permanent system till end of Oct at the soonest. :(
Trigeminal Neuralgia since 1999 (possibly since 1987 :( Occipital Neuralgia (confirmed) since 2002 after MVD. Anethesia Delorosa after MVD of Jan 2002 (not necessarily because of surgery but likely, ask me if you want more detail... ) Migraine sufferer for 25 years. Tried EVERY kind of med and therapy... I'm a walking encyclopedia of medical info now :( Did Peripheral Nerve Stimulator trial recently.. (Aug 09) Went very well. Must wait for permanent system till end of Oct at the soonest. :(
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Interests
Photography, Bible, Homeschooling Mom
Photography, Bible, Homeschooling Mom
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Recent Activity
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Journal
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Neuro Stimulator trial
July 29, 2009 7:15pm
I had the trial neuro stimulator put in yesterday. It will be in for one week. I'm rather sore today and have no hair on the back of my …
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Neuro Stimulator
July 21, 2009 1:51pm
I will be undergoing a trial next week for a Neuro Stimulator. It's like a spinal cord stimulator except it will be in my head. They …
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Hugbook
Hug
Dmnearest Amy,
Sorry about my past two mess-ups (below) but I really am three times sorry about all your pain, itchy and terrible feelings. Joy comes in the morning. Hang on until then.
Love,
Dulcinea2-
Sorry
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Sorry
Miss You
hi missing you in indiana hope all is well and you aren't in a funk of pain.
write when you can blessings for a good weekend amy.
julie
Hug
Thinking of you and praying all is well. Blessings to you, T
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Photos
amymzj hasn’t uploaded any photos yet
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Support Groups
Close Trigeminal Neuralgia
It's in my profile... I joined this group last night but my post ended up in the Depression Group somehow ???
Treatments
- Nerve Blocks Somewhat Helpful
- Several... Peripheral and pulse radio frequency for Occipital Neuralgia. The first peripheral block helped the most and it's been down hill from there... :(
- Keppra Working / Worked
- Tegretol Somewhat Helpful
- Worked for about 1 year with a combo of others but became increasingly less effective. Eventually had an MVD
