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  • About Me

    Image of toby1129

    toby1129

    Female, 56, Married
    NJ, USA
    Member since April 5

    • About Me

      I was only diagnosed with RA at the end of 2008 and so far have not found the right medicine "cocktail" to help. So far I've been on prednisone, methotrexate, enbrel, humira and Simponi and Orencia supplemented by rx strengths of vitamind D and folic acid. So far no luck with the meds. I have a new Rheumy and feel much more confidence in him than the old one. He says we'll keep trying different things. (Update this rheumy was another dud. I am moving on to an new one. There has to be a good one out there for me.)I try to stay off the pity pot but do go there sometimes. I feel like I live my life in 4 to 6 weeks blocks hoping that meds will work. I've been struggling to deal with the things I can no longer do and trying to stay grateful for the things I can do. This is a wonderful site and the people here are a blessing!

      I was only diagnosed with RA at the end of 2008 and so far have not found the right medicine "cocktail" to help. So far I've been on prednisone, methotrexate, enbrel, humira and Simponi and Orencia supplemented by rx strengths of vitamind D and folic acid. So far no luck with the meds. I have a new Rheumy and feel much more confidence in him than the old one. He says we'll keep trying different things. (Update this rheumy was another dud. I am moving on to an new one. There has to be a good one out

    • Interests

      Spirituality, Children Psychology, child development, advocacy for children and elderly

      Spirituality, Children Psychology, child development, advocacy for children and elderly

  • Journal

    • This entry is private

    • This entry is private

    • This entry is private

    • This entry is private

    • I did it.

      Mood October 11, 2009 4:17am

      I went to Atlantic City with Hubbie as planned this week.  After a year of staying home alone and encouraging him to go without me I decided I …

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  • Hugbook

    Give toby1129 a hug



    • Little Love

      From mimipie Today

      Sending you love for the support and truth that you shared with me. I needed to hear the correction and truth to take good care of myself in this situation. Thank you for the courage you displayed as you gave me good counsel.

    • Prayer

      From Joey1234 Today

      Sandy, Sending a special prayer your way! I want you to know I am here for you. Any time you need to talk or vent or whatever. I am here for you. You have supported me. Now it's my turn to support you. God Bless!

    • Prayer

      From lam0814 Today

      Hey - I'm thinking perhaps your hubby works for the same Telecom company I work for? We call it a RIF too. I'm dreading today, but I'll be saying a prayer for your hubby as well. Hugs, Lisa

    • Hug

      From JJFlash083 Yesterday

      You are a good neighbor. The worst thing about your dilema is that there is a cure for macular degeneration.

    • Hug

      From Ruthy2 Saturday

      I hope you're feeling better..Ruthie

    Read Hugbook

  • Support Groups

    • Close Rheumatoid Arthritis

      Diagnosed with RA finally after wrong diagnosis and treatments for months. Nothing has helped much so far.

      Treatments

      Enbrel Not Working
      Terrible itching, but kept it up. Unfortunately it didn't work for me.
      Folic Acid Too Soon to Tell
      Humira Not Working
      Had an allergic reaction to first injection and had to stop.
      Methotrexate Somewhat Helpful
      Helped a little, but not much.
      Prednisone Somewhat Helpful
      Helped a little, but I had terrible mood swings and felt like I was losing my mind so discontinued use.
      Vitamin D Too Soon to Tell
      Rheumy tested and found Im deficient so gave me an rx strength supplement to take once a week.
    • Close Incest Survivors

      To share. Hopefully give and take. A recent debilitating illness has brought some old feelings of helplessness to the surface.

      Treatments

      Psychotherapy Working / Worked
      Went through several therapists over the years until I found the one that was right for me. We worked together for many years and I do mean work. She always let me set the pace and decide what felt safe to talk about. It was never about an agenda or breakthroughs.
  • Friends


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