Journal Entry for August 18, 2009
August 18, 2009 10:34am
trigirl085
6:25pm, August 2, 2009
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About Me
trigirl085
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About Me
Have hesitant DX of mild lupus and thankfully rheumie put my on drugs anyways which has literally given me my life back and just having the DX, however tentative, was enough to get me to push beyond the illness and get back to living.
Have hesitant DX of mild lupus and thankfully rheumie put my on drugs anyways which has literally given me my life back and just having the DX, however tentative, was enough to get me to push beyond the illness and get back to living.
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Website
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Interests
cooking, camping, fishing, writing, canoeing, sunshine :), movies, laughing
cooking, camping, fishing, writing, canoeing, sunshine :), movies, laughing
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Recent Activity
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Journal
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Supplements, Oh Supplements
May 3, 2009 9:56pm
Ok, decided to make a brief list of the supplements I'm currently taking pre-visit to the doc after my test results are in.
Morning:
Acetyl …
This entry is private
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Working to Pass Out on the Weekend
April 19, 2009 8:37pm
Ok, so I have noticed a pattern in the past three weeks. Each week i start out Sunday/Monday crashing which lasts 2-3 days then when my week tapers …
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Oh Boy
April 13, 2009 4:42pm
Wow, this is getting rediculous. After spending the 1.5 days doing nothing but shuffling around my parents house and doing homework and feeling ok …
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Hugbook
Hug
thank you for your kind message. hope you are well x x
Hug
Hey, Can I ask what kind of treatments you're on or have done? I read your doc had CFS. So is she well now? Make sure you aren't pushing too hard and sending yourself backwards! Take care
Get Well Soon!
Hope you get to feeling better soon!!!
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Ray of Sunshine
thank you so much! I'm in a world of confusion right now and this site has been extremely helpful so far.
Ray of Sunshine
Hope you're having a bright day!
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Photos
trigirl085 hasn’t uploaded any photos yet
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Support Groups
Close Migraine Headaches
I have chronic migraines as part of my CFS, they started 2 years ago and were only period based then moved to weekly and daily these past 3 months.
Treatments
- Caffeine Working / Worked
- Worked once DECREASED because once the caffeine wore off they were exacerbate.
- Excedrin Working / Worked
- Works OK with the nausea, headache a little bit.
- Magnesium Working / Worked
- since integrating into diet has kept them low-grade daily with only fare-ups instead of constant
- Frova Working / Worked
- Worked well if taken before became too nauseous but only for period based migraines I believe.
Close Healthy Eating
I eat close to all organic/local as can, higher protein than carbohydrate as is recommended for AI diseases (not south beach low), no added sugars, only one cup caffeinated green tea daily, and alcohol limited to once a month if that
Treatments
- Organic Diet Working / Worked
- I eat everything I can organic now, now processed foods, make all my own meals
- Physical Exercise Working / Worked
- was great when I could- I was into triathlons and taught backpacking/hiking. Now I do yoga, meditation, and walking as tolerated
Open Lupus
current dx of mild lupus
Treatments
- Plaquenil Too Soon to Tell
- on 400 mg, only been on less than a month so we'll see
- Prednisone Working / Worked
- on 10 mg per day, after 2.5 weeks has significantly less fatigue, better response to doing activities- don't get as achey/horribly fatigued, and muscle pain when walking went away completely
Open Antiphospholipid Syndrome
I have LA and moderately positive anti-card IgM but no clotting yet, so not sure where to go from here; also have tentative DX of lupus
