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  • About Me

    Image of 19Dave53

    19Dave53

    Male, 56
    Chicago, IL, USA
    Member since March 30

    • About Me

      56 year old male with NF1. Married for 20 years with two stepsons. I believe people can overcome NF or any other problem they think is holding them back.

      56 year old male with NF1. Married for 20 years with two stepsons. I believe people can overcome NF or any other problem they think is holding them back.

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  • Hugbook

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    • Hug

      From Taqueme May 27

      welcome back.

    • Hug

      From Taqueme April 21

      You and eye are eye to eye. In the work I do with special olympics I have helped to arrange events with over 300 people. Something like that will take a lot more than just saying "Yea! Lets do it!" If we can get a plan and other people on board, we can pull it off.

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  • Support Groups

    • Close Neurofibromatosis

      I am a 56 year old male with NF1. I have been married for 20 years and have two stepsons. I have thousands of tumors and have experienced descrimination because of my NF. I belive people with NF should not let NF rule their lives.

      Treatments

      Gabapentin Working / Worked
      I was haing severe pain in my side. Primary perscribed several medications that did not work. He informed me that next med would make me unable to drive or work. NF specialist reccommened Gabapentin. Pain eventually went away.

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