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  • About Me

    Image of friffy65

    friffy65

    Female, 44
    north tonawanda, NY, USA
    Member since March 30

    • About Me

      i am a single mom of 18 year old son hair dresser but curently disabled due to narcolepsy and cataplexy. have suffered since the age of about 16 undiagnosed for 12 yrs.no histery in family. would like to meet people with this disorder no support groups in area.

      i am a single mom of 18 year old son hair dresser but curently disabled due to narcolepsy and cataplexy. have suffered since the age of about 16 undiagnosed for 12 yrs.no histery in family. would like to meet people with this disorder no support groups in area.

  • Recent Activity

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    • 1 discussion post

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    August 25

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    • Gold Star

      From pkarmstrong April 10

      for being brave enough to post that funny stuff..im glad i don't have C cuz i laughed so hard about the horse thing i almost cried..how did u writ that without laughing too?

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  • Support Groups

    • Close Narcolepsy

      i am 43 year old single mom of 18 year old son.i have had narcolepsy with cataplexy since the age of 16. undiagnosed for twelve years.iam curently disabled but worked as a hair dresser for many years.th e demand of my job and the use of stimulants finally took its tole un me and i applied for ssd. since then i feel depressed because even though iwas exausted most of the time iand had to push myself i loved my career and am still very talented at it.hoping to chat with others who have narcolepsy.

      Treatments

      Provigil Somewhat Helpful
      i take 100 to 300 a day i hate the way it makes me feel but need it to function
      Xyrem Too Soon to Tell
      i am very nervous but at this point i beleive it might be just what i need to hope fully get me to a better functional level
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