For my "patient story" go to: http://www.talkaboutsleep.com/third_tier/patient_stories_narcolepsy_marilyn.htm I have 4 children ages 26, 23, 23 and 11. And a lovely Russian daughter in law. (The pictures are from the wedding July-2008)I am looking forward to becoming a grandmother this Dec. I was a Social Worker for over 25 years. Now I own a neighborhood consignment shop, Second Impressions. Although I realized after diagnosis ( Jan. 2009) that I had had narcolepsy for over 20 years, I really consider last Fall (2008)as when I "got sick". Up to then I had been able to somewhat manage my symptoms with melatonin at night and a low dose of Prozac in the day. I also think that a low carb/high protein diet was a positive factor...I would say it had gotten very challenging for about 2 years before that. I also have sleep apnea. I discovered that women may develop sleep apnea when they get older due to all the body changes that occur. I suspect that the sleep apnea on top of the narcolepsy is what wiped me out. Note about sleep apnea- I am not over weight and I do not snore. My experience was that I went to sleep easily and slept through the night (with a my routine dose of melatonin which I had been taking for probably close to the same 20 years) My husband observed that I seemed to sleep soundly but my sleep study showed that my breathing was disrupted on the average of 31 times an hours-effectively knocking me out of deep sleep though very seldom waking me. Needed to take the opportunity to do some sleep apnea education too.
For my "patient story" go to: http://www.talkaboutsleep.com/third_tier/patient_stories_narcolepsy_marilyn.htm I have 4 children ages 26, 23, 23 and 11. And a lovely Russian daughter in law. (The pictures are from the wedding July-2008)I am looking forward to becoming a grandmother this Dec. I was a Social Worker for over 25 years. Now I own a neighborhood consignment shop, Second Impressions. Although I realized after diagnosis ( Jan. 2009) that I had had narcolepsy for over 20 years, I really consider
People! Books! Gardening! Narcolepsy! FRIEND REQUESTS FROM NARCOLEPSY GROUP ONLY PLEASE-I am not a PWN snob- just have limited time resources and PWN are family!
People! Books! Gardening! Narcolepsy! FRIEND REQUESTS FROM NARCOLEPSY GROUP ONLY PLEASE-I am not a PWN
November 1, 2009 9:15am
Still recovering from the conference so I will be writting more about it soon. I also picked up all the back issues of the Narcolepsy Network …
October 26, 2009 11:52am
I attened Dr. Naiman's workshop Dreamcircle and Shedding Light on the Dark Side of Narcolepsy.
In the touchy feely world of …
October 12, 2009 1:37pm
I had written this review for Talk About Sleep a few months back. For various reasons it hasn't been published in the newsletter yet, but …
October 10, 2009 10:28am
Still need a theme of "ponderings"...or maybe I need to accept that my rambles are rambles, and not try to give more status...anyway I need …
October 7, 2009 6:59pm
A customer walked into my shop this afternoon and said, "Can I come shop or are you closing"?
That is significant because I had no idea it …
HI, I WANTED TO SAY HELLO. I SEE YOU AROUND AND ENJOY READINGS YOUR POSTS. I AM SENDING YOU ALITTLE SUN TODAY.
WELCOME TO THE CLUB FUNNY BONE MY FRIEND... HOPE YOU ENJOY ALL THE CONSTANT LAUGHTER AND FUN!!
Hi there MARILYNLIZ...and a big warm hearty welcome to CLUB FUNNY BONE! Hope YOU enjoy the nonstop fun & laughter, day in and day out! HUGZZZZ & MOOZZZZ, Willgord.
please join and if you could possibly do me a fav i am looking for a newbie sit in the hot seat it just a bit of fun but you get asked all sorts ofg wierd and wonderfull Questions you can answer honestly or turn em into jokey answers lol it all fun and games but i would realy apreciate it if you could the hot seat is due to start on the 9th hope you will spweak soon your friend DM
Have a safe trip my friend.
Diagnosed with narcolepsy in January 2009
