diagnosised with SLE in march of last year. was positive i would "beat this thing".but now hope is all but gone.i need to get refreashed somehow.my family struggles with the fact i can't do what i used to..and i don't like how i am struggling just to keep my idenity..which was tied up in my work..now i cant work..i am sick all the time and don't get out much anymore.
diagnosised with SLE in march of last year. was positive i would "beat this thing".but now hope is all but gone.i need to get refreashed somehow.my family struggles with the fact i can't do what i used to..and i don't like how i am struggling just to keep my idenity..which was tied up in my work..now i cant work..i am sick all the time and don't get out much anymore.
art, science, cats and my kids and the internet.
art, science, cats and my kids and the internet.
January 16, 2009 12:14am
i write a note to my pator telling him that it was a very bad lupus week last wek and i got so sick at one point i new i would die if i didnt get to …
October 31, 2008 2:51am
i hope my hopeless and dreadful journal entries haven't scared off the few people who have been hugging me and praying for me from this site..i …
October 17, 2008 1:22am
i am going to try with rvry breath to be happier person when writing these public journals..a few of this lupus group send me hugs and i feel like i …
October 11, 2008 5:08am
my last journal entry was one of sadness and fear..well it isn't much better..on some points..i did start getting SSI which was all GOD the …
September 18, 2008 1:00am
i am sooooooooooooooooooooooooooo lonely!!!!!!!!!!empty of hope.........went to a liver doc..said i have PBC..a cronic auto imune illness of the …
I wish you were feeling better. This has been a very long bad period for you. Just wanted to let you know that I was thinking of you. Sorry it's been a while, just have a lot of stressful stuff going on here.
Hope you're okay. I'll check with you later. I was at doc all day and will be again tomorrow. going to catch some ZZZZ's
HUGS to you my friend... Hope this brightens your day !
Good Morning...Sending a hug.Hope you are ok. :)
Hi, Thanks so much for your encouraging words, you need to hear yourself. You sound like me. We got to share the positive thoughts. sounds like your husband is supportive and that's a good thing. I try not to burden my family and friends with my depressing thoughts that's why I find DS so good for me. I hope I can be support to you when needed. Hugs,Kim
