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  • About Me

    Image of driftingmusic

    driftingmusic

    Female, 17
    NJ, USA
    Member since March 29

    • About Me

      I'm 16 years old and I've had Raynauds since December of 2007. I love music and acting, but sometimes Raynauds gets in the way of that. I'm here to help whoever needs it

      I'm 16 years old and I've had Raynauds since December of 2007. I love music and acting, but sometimes Raynauds gets in the way of that. I'm here to help whoever needs it

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  • Support Groups

    • Close Raynaud's Disease

      In December of '07, I began experiencing painful nodules all over my fingers, which, to this day, my doctor cannot diagnose. I was rushed to the doctor, and then to a rheumatologist, who then sent me to a pediatric rheumatologist in NYC. She has helped me a lot, and has diagnosed me with Raynaud's, Livedo reticularis, GERD, asthma and chronic headaches. In addition, I am also being regularly treated for ADD. I attend six doctors regularly and take 12 pills per day to keep myself on track.

      Treatments

      Trental Somewhat Helpful
      Trental sure tastes funny, but it does good things for my veins. it
      Procardia XL Working / Worked
      Is VERY VERY helpful but gives me headaches when i forget to take it.
      Prevacid Working / Worked
      Works well to quell the GERD that comes along with a large amount of medications.
      Plaquenil Working / Worked
      Although a malaria treatment it works very well to open the veins.
    • Close ADHD / ADD

      I have had ADD for 6 years now, and am just looking for some support.

      Treatments

      Concerta Somewhat Helpful
      Worked, though not as effective as current meds
      Metadate Working / Worked
      Currently works pretty well, although not producing amazing results
      Music Working / Worked
    • Open Acne

      I hate acne.

      Treatments

      Benzoyl Peroxide Somewhat Helpful
      Have ADD, so daily regimens aren't my thing.
      Retin-A Working / Worked
      Eh.
      Doxycycline Working / Worked
      Cleared up my cystic acne quite well but upset my stomach a lot.
  • Friends


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