Random stuff....
June 11, 2009 1:13am
Well, I've received word that my insurance will no longer be covering my Cellcept - an important immunosuppresant that I've been taking since …
alb123
5:42pm, April 24, 2009
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alb123
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5 Month Post-Transplant Check-up
May 29, 2009 6:52pm
Yesterday, May 28th, I went to the Lahey Clinic for my first checkup in 2 months. Besides the on-going pain in my joints that still hasn't been …
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117 Days Post Liver Transplant
April 21, 2009 4:23pm
Well, today I was discharged by my visiting nurse. I am now 117 days post liver transplantation and doing "okay". My bloodwork …
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Hugbook
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Just dropping in to check on my friends. How are you doing? Hubby is doing alright. He is actually gaining some weight back,his face isn't as sunken in. Let me know how things are for you my friend,when you have a moment to reply.
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Chris,
Please read my latest posting 'Alcoholic Cirrhosis as a Syndrome' It is fascinating......Craig-
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I'm sorry Chris. Let me know what's happening with you.
I just got an iPhone this last weekend it is awesome! Nearly died last week! The world goes on. I hope you are not suffering too much and hope what ever it is gets fixed asap.......Craig -
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Are you ok Chris? You've been rather quiet and not been around much. Let me know if everything is ok with you.........Craig
Moment of Peace
Thanks would appreciate the information, already talked with Hep Doc and they will not cut on me for same reason. My counts are always in the tank, when my PCP saw my liver panel he was ready to send me back to hospital for extremely low platelets and white blood cell count. Told him this was normal for me.
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Close Organ Transplants
Types: LiverDiagnosed with severe liver disease in June 2008 at the age of 33. Received a liver transplant Christmas Day, 2008...
Treatments
- Cellcept Working / Worked
- I've been on Cellcept since the transplant and I'm starting to notice side-effects that I've read may possibly be associated with Cellcept usage; severe joint/muscle pain, hair loss, fatigue...I can not conclusively say these are due to the Cellcept and I will be seeking the help of a Rhuematologist soon to see what he has to say.
- Cyclosporine Working / Worked
- I switched to this medicine from Prograf, which my transplant doctors believed was the cause of my 50 days straight 24/7 Migraine headache. So far, the headaches have continued but, to a lesser intensity (usually) and they are no longer 24/7 in length.
- Prograf Working / Worked
- Prograf was working just fine, however, my body wasn't enjoying it as I developed migraine headaches that honestly were 24/7 throbbing for about 50 days straight. I have since switched to Cyclosporine.
- Valcyte Working / Worked
- Liver Transplant Working / Worked
Close Cirrhosis
Treatments
- Liver Transplant Working / Worked
- Received a liver transplant Dec. 25th, 2008.
Open Chronic Pain
Treatments
- Heat Somewhat Helpful
- Heat provides very minor, short-term relief on joints.
- Duragesic Patch Working / Worked
- The Fentanyl patch provided great continuous pain relief and it comes with an added benefit of 72hour applications. Started on a 100mcg patch decreased incrementally 75 50 and then 25mcg strength. No noticeable side effects at all.
- Hydromorphone Working / Worked
- Originally prescribed during my time with liver disease to treat the overwhelming pain of an overworked failing gallbladder and frequent gallstones. While hospitalized injections of 2mg every 4 hours provided outstanding breakthrough pain relief. Also took 2mg oral tablets offset by 2 hrs from intravenous injections for balanced pain relief. The combination of the two after liver transplant surgery was very effective in providing pain relief. Currently still taking 2mg pills orally.
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