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  • About Me

    Image of cayuska

    cayuska

    Female, 31
    Chicago, IL, USA
    Member since March 29

    • About Me

      My fiance suffered from a sinus infection that moved into his brain..turned into bacterial menegitis..turned into hydrocephalus..also caused bilateral brain stem strokes. Considering the fact it's amazing he's alive, he's also recovering quite well so far. He was in the hospital in the Neuro ICU for two months, he was then transfered to a Rehabilitaion Institute for one month. He's now home in rehab three times a week. He's been home for 3 1/2 months. He couldn't eat, speak or hardly move his own body when he came home. He now eats everything! He is in a wheelchair now but is working on standing in therapy. He can talk, scream, laugh! He still has a long road ahead of him, ahead of us but we work at it everyday..some are good and some are harder than others. I don't know how far he will recover but I have hope for him, I have hope for us. I just need to know what other people with the same or similar stories are going through. I need a little support.

      My fiance suffered from a sinus infection that moved into his brain..turned into bacterial menegitis..turned into hydrocephalus..also caused bilateral brain stem strokes. Considering the fact it's amazing he's alive, he's also recovering quite well so far. He was in the hospital in the Neuro ICU for two months, he was then transfered to a Rehabilitaion Institute for one month. He's now home in rehab three times a week. He's been home for 3 1/2 months. He couldn't eat, speak or hardly move his own

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  • Journal

    • Seeing the light

      Mood April 1, 2009 2:09pm

      Nick has been extremely frustrated and aggressive over the last month.  We went to the ER on Thursday and he spent two days back at Rush.  …

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    • High Five

      From ifnotzero June 22

      Hope you have a good day...

    • Hug

      From 4tina7 April 18

      Sening a hug your way, hoping you have a wonderful day! Tina

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  • Support Groups

    • Close Hydrocephalus

      My Fiance had a sinus infection that moved to his brain..turned into bacterial menegitis..turned into hydrocephalus..caused bilateral brain stem strokes. He is 30 years old. We booked our reception hall the day before this all happened in September. He was in the Neuro ICU for two months, spent one month in a rehab center. He has been home now since December and is in therapy (sp,OT and PT) three times a week. Overall, he's making progress.

      Treatments

      Shunts Working / Worked
      He has a two shunts..one on the left and one on the right side of his brain. So far so good.
    • Close Meningitis

      Treatments

      Vancomycin Working / Worked
    • Open Stroke

      cayuska hasn’t entered any details for this support group.
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