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  • About Me

    Image of ronron1616

    ronron1616

    Female
    USA
    Member since March 27

  • Recent Activity

    • Sorry, there is no activity in the My Activity feed.
  • Journal

    • Wednesday April 22, 2009

      Mood April 22, 2009 5:11pm

      I went to the Neuro-Optho on the 15th it went good. I liked the Dr. He did say that I do have PTC. My optic nerves appear to be getting better. The …

    • Wednesday April 8, 2009

      Mood April 8, 2009 10:32am

      When I went to my Nuero and he said I might have PTC and refered me to a Nuero-Optho.

      My neuro put me on Diamox and my HA were getting seeming to get …

    • Tues March 30, 2009

      Mood March 31, 2009 9:54am

      I hate playing the insurance game in waiting for a referal to a neuro-optho.... Don't they know that when you add stress to a person that …

    • Sat March 28, 2009

      Mood March 28, 2009 10:31am

       

      Today I had to come to work on Sat, I normally work Mon - Fri...

       

      I didn't get woke up by a headache last night, for the first time in …

    • First entry March 27, 2009

      Mood March 27, 2009 2:50pm

      Yesterday I went to get my LP results. My opening pressure was 24.... The Dr. said that was boderline for PTC. And is sending me yet again to another …

    Read Journal

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  • Support Groups

    • Close Pseudotumor Cerebri

      Hello I first went to my primary Dr. She just gave me a tension headache medicine, they worked in the begining and than after a month they quit. My headaches moved to behind my right eye so I went to optomitrist he said he saw alittle sweeling of my optic nerve in my right eye, so he sent me to a opthomotrist he said there was swelling in both eyes & sent me to a nuero.Had a MRI that was normal & LP with borderline ICP waiting to go to a Neuroopthomogist to confrim possible Pseudotumor Cerebri

      Treatments

      Topamax Not Working
      This was given before my LP and was of no relief.
      Lyrica Not Working
      This only gave my a worse headache The side effects said headaches... Doesnt make since gave someone meds for a headache with a side effect of headaches!
  • Friends


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