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  • About Me

    Image of StepN

    StepN

    Female, 42
    USA
    Member since March 26

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    • I’m With You

      From jfrank7 April 16

      My daughter was diagnosed at 7 months. She also struggles with high calcium. She is 19 months now and has it undercontrol though diet. I love to hear more about your cute little boy!

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  • Goals

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    Goal End Date is May 17, 09 197 days ago.
  • Support Groups

    • Close Williams Syndrome

      My grandson is 3 yrs old and has Williams Syndrome. He was diagnosed at 19 months and has WS with Hypercalcimia. The high high calicium levels caused his skull to prematurely close and caused pressure on the brain which led him to loose his vision, We are still working on trying to keep the high calicium under control, weight gain, and working with his blindness. Any suggestions will be greatly appreciated.

    • Close Blindness & Visual Impairment
      Type: Totally Blind

      My Grandson has WS with hypercalcimia. He body produces too much calcium that prematurely closed his skull and put pressure on his brain. We did not know that pressure was building on th ebrain and before the doctors could catch it, the pressure severed the nerves in the back of the brain. We have excepted his blindness but we need any suggestions on how to help him out.

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