Join Now

Free, anonymous support from people just like you.

We're on Facebook!
Check out our page!
DS Store is Open
DS t-shirts and more
Advertisement

scotti
Female, 41, NY
"This is frustrating!"
9:43am, October 23, 2009
Journal Entry for October 24, 2009 Mood
Saturday, October 24, 2009
  Well yeaterday was a little rough, I had spasms that worsened throughout the day and my right hand had the old tremor back, lots of cramping in my right leg and right side of my neck, double vision just a little again last night, and a little off balance.Not sure what brought it on, the colder weather or the medication that is supposed to prevent all of this or the exercise I've been doing the last few mornings.This morning hasn''t been too bad. I'll see how the rest of the day goes.
RATE THIS ENTRY:
Inspirational
Moving
Helpful
Creative

Journal Entry for October 22, 2009 Mood
Thursday, October 22, 2009

  Saw the neuro on Mon. and he wants me to take the Artane everyday now to see if it will prevent a flare up. Seems to me like we tried that in the spring and it didn't work then. Oh well, I'll try again and see what happens.I've taken it for three nights now and this morning my toes were "purring" again. He doesn't really want to hear about any of my other symptoms and is just focusing on the spasms, it's all so frustrating.He seems to be sure that if we can prevent the spasms the other stuff will clear up too even though he admits that alot of my other symptoms are not common to dystonia. I just feel like he's missing something. I will be faithful to take my pill and keep a log of symptoms for the next four months till my next appointment and maybe he'll turn out to be right. I always said it would be nice to just take a pill and make it all go away.

  He certainly was not the least bit interested in my dietary changes that I really think are helping because when I do have a flare up lately it doesn't last as long and is not as intense. Well I'm happy with how it is working so I won't let his opinion deter me. I have lost 54 pounds since March and feel terrific.

RATE THIS ENTRY:
Inspirational
Moving
Helpful
Creative

Journal Entry for October 13, 2009 Mood
Tuesday, October 13, 2009
   It's several hours later and my toes are still purring. The spasms have gotten much worse and my legs "dissappeared" when I walked across the living room earlier. Lots of tingling going on on my left side too. Idrove myself to church this morning knowing I wasn't quite right and I went for a walk before Bible study started feeling like it was not such a great idea, but I'm stubborn. By the time we were done someone had to help me to the car 'cause I could barely walk and someone had to drive me home. I took anap which settled things down a bit , but when I get moving again it just gets worse. This is such a pain!
RATE THIS ENTRY:
Inspirational
Moving
Helpful
Creative


Advertisement
Content on DailyStrength.org is for informational purposes only. We do not provide any medical advice, diagnosis or treatment. More info
Portions of support group and treatment information provided by Wikipedia under the GNU FDL license
Copyright 2006-2009, DailyStrength, Inc. All rights reserved.
Terms of Service | Privacy Policy | Report Abuse | HSW International | HSW China | HSW Brazil