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  • About Me

    Image of pinkorange

    pinkorange

    Female, 26, Single
    Tokyo, JPN
    Member since March 24

  • Journal

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  • Hugbook

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    • Chocolate

      From AussieFay September 30

      Sounds good to me Ayaka, although I must stop eating chocolate I'm putting my weight back on.lol

    • Hug

      From Optim September 16

      The important thing is to have good days. After a few of these, you might be able to do it on your own! Keep on !!

    • Hug

      From Jen564 August 24

      How are you today? I have been thinking about you today as you sound so depressed on your FB and DS profiles. Fatigue is still a major symptom for me, particularly the week before my injection (which is this Friday). I had an extremely busy week at work so am shattered. I tried to rest over the weekend, but am still tired. Unfortunately didn't have the energy to go to karate tonight. It's a catch-22. Feel good after a class, but takes a while to recover due to exhaustion so I don't return for a week or so. Hopefully will feel better after injection on Friday.

      Take care, stay strong and just remember you have a lot of friends thinking of you at this difficult time.

    • I’m With You

      From AussieFay August 24

      Good for you mate, just take one day at a time. :)

    • Little Love

      From mianutzy August 22

      give yourself some extra tlc and keep fighting. Forgive yourself for the slip up. You are trying and that is what counts. Baby steps. HUGS

    Read Hugbook

  • Support Groups

    • Close Acromegaly

      I was diagnosed in 2007 (24yr) while I was studying abroad in the US, and got a surgery in April, 2007 at Sparrow Hospital (MI, USA). Had complication of CSF leak post-op. Now, I'm back to Japan, and seeing Dr. Hizuka at Tokyo Women's Medical University Hospital. I'm treated with Sandostatin LAR (20mg) every 35 days.

      Treatments

      Octreotide Working / Worked
      Is successfully managing my GH and IGF-1 levels, yet I feel very fatigued after the shot for 2-3 days. Also, this medication is way too expensive!
      Surgery, Brain Working / Worked
      Did work significantly. However, my tumor had invaded into cavernous sinus and other surrounding structures, so the cells still remain on the site. I had CSF leak as a complication.
    • Close Depression
      Type: Clinical (Major) Depression

      I have been hospitalized twice for clinical depression. After several suicide attempts, I'm still alive... I don't really want to live, but I decided to live, finally.

      Treatments

      Effexor Working / Worked
      I had a horrible constipation while I was on this med. Also, withdrawal symptoms can be pretty bad.
      Lexapro Not Working
      Positive Thinking Somewhat Helpful
      Psychotherapy Working / Worked
      I wish I could go back to the therapy again...
      Trazodone Somewhat Helpful
      I don't like this med... I felt like it forced me to sleep, and on the next day, I had a bad headache and fatigue.
      Writing Somewhat Helpful
      When I have enough energy, writing is wonderful.
    • Open Migraine Headaches

      Treatments

      Avoid Certain Foods / Chemicals Somewhat Helpful
      Caffeine Not Working
      Maxalt Somewhat Helpful
      Naproxen Somewhat Helpful
      Tylenol Not Working
      Naproxen Working / Worked
    • Open Physical & Emotional Abuse

      Treatments

      Group Therapy Somewhat Helpful
      Psychotherapy Somewhat Helpful
    • Open Raynaud's Disease

      pinkorange hasn’t entered any details for this support group.
    • Open Chronic Fatigue Syndrome

      pinkorange hasn’t entered any details for this support group.
    • Open Hemorrhoids

      pinkorange hasn’t entered any details for this support group.
    • Open Environmental Allergies

      Treatments

      Nasal Irrigation Working / Worked
      Sudafed Working / Worked
      Zyrtec Working / Worked
      Astelin Working / Worked
    • Open Eating Disorders

      pinkorange hasn’t entered any details for this support group.
  • Groups

  • Friends


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