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pearl240 
11:51am, March 22, 2009
Like many of you here, I have been desperate to find out what was so wrong with me for many years. Even if it's only been a year or a few months for you, I know what a desperate feeling it is.
We don't want to be sick, and in looking at most of here and comparing our profiles, it's amazing to see how similar we all are. We are active, we love life, we love our families and nature’s beauty, and I think that's why we have found each other here. Because we don't give up, if we are here it's because we are searching to find a way of helping ourselves and each other and we don’t quit.
I know that it's hard to believe, but it's true that I have seen at least 12 to 15 doctors, and I'm not even including eye specialists that told me that my horribly painful red eye was an infection. I came so close to having the sclera literally melt from what turned out to be Scleritis, that I have permanent damage. But because I kept on and on searching, talking to others, searching on the internet for different support groups, I found a Uvitis support group on line out of Boston back in 2002. I was in so much pain and despair that I didn't want to see another day. God led me to this group, and because of them I found a local doctor that was able to help me and I have the Scleritis under control. It's also an immune disorder like my RA and Hashi’s.If you are feeling down from not only feeling terrible, but because you are still just in limbo trying to find someone that would listen to you, please don't give up. Never, ever give up hope and when you're having one of those horrible, terrible not wanting to see the next day’s day, keep the Lord's message that He is with you….keep the image of His Face at all times. He will always be with you....a lot like this group. We may not post every day, but we know that we are all on the other side of this cyber wall.
Looking forward to more good days but knowing that this may not last and praying for strength from God to always be with me and helping me to stay strong, Zeyda.
Best to all.....please never give up hope and I pray that you will always have the strength to fight the bad days and the Faith to know that it will get better.
Comments
I take my MTX on Friday’s and last weekend was terrible; in bed most of the time and when not just crying because I’m so tired. I went to work on Monday, and it was a terrible/horrible day, but I made it and today is Friday and tonight is MTX’Night and going up to 8 pills this week.
So, what’s the weekend going to be like if 6 had me down and out, what’s 8 going to do? But I have to push through like I did on Monday...I'm at work right now and all that I can think about is the day ending and I can go home and rest. My body must know what I’m going to do to it tonight and it’s yelling out in pain. I’m mentally running down the body thinking about each joint to try and find one that doesn’t hurt….no luck yet.
Anyway, we must keep-on-keeping-on….be patient and it will pay off.
Thanks for listening
Zeyda
Comments
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Here's hoping your weekend will be better than the last one!
Jess
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Hi Jess, thanks. Had my MTX last night, and this is the first Saturday that I feel pretty normal. Not great, but I can function.
How are you doing?
I just got an IPod for the first time and it's so great to get lost in beautiful music. Have you heard the song "Mary did you know"? "Did you know that your baby boy would one day walk on water? did you know that your baby boy will save our sons and daughters and to make you new...... did you know that when you kiss your little baby you kiss the hand of God...Oh Mary did you know? The blind will see; the deaf will hear and the dead will live again."
That is my inspiration...I'm sorry for being such a brat today and telling someone off and hope that it didn't cause any problems for anyone here. You are such a great group of people and I haven't even seen your faces....but I know that you are all there. God is with us at all times, and He's my inspiration. I'm having and I have been having terrible days, but His Face is Love and He's with me. Things will get better, but for now you are all the beautiful Angels that He puts in our path....thank you for being there.
I'm crying because I'm happy and sad at the same time. I don't let anyone ever see me cry because I know how much it would hurt my family and I don't want them feeling sorry for me. I've been thinking a lot about an old friend of ours who passed away several years ago and how difficult his life was at one point. They lived in Boston when his children were very little and they had no family nearby. His wife became very sick with cancer and he had to travel miles to see her at the hospital and every day after work he would pick up the kids at the nursery and drive an hour so that they could all be together. Love is beautiful.
Take care.
Zeyda
That is my inspiration...I'm sorry for being such a brat today and telling someone off and hope that it didn't cause any problems for anyone here. You are such a great group of people and I haven't even seen your faces....but I know that you are all there. God is with us at all times, and He's my inspiration. I'm having and I have been having terrible days, but His Face is Love and He's with me. Things will get better, but for now you are all the beautiful Angels that He puts in our path....thank you for being there.
I'm crying because I'm happy and sad at the same time. I don't let anyone ever see me cry because I know how much it would hurt my family and I don't want them feeling sorry for me. I've been thinking a lot about an old friend of ours who passed away several years ago and how difficult his life was at one point. They lived in Boston when his children were very little and they had no family nearby. His wife became very sick with cancer and he had to travel miles to see her at the hospital and every day after work he would pick up the kids at the nursery and drive an hour so that they could all be together. Love is beautiful.
Take care.
Zeyda
Comments
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I didn't see where you told anyone off?
Yes, I like that song.
(Misc. comments!) :)
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Oh, I see, now. It wasn't that bad, Zeyda.
Clearly, the situation needed to be clarified and I think you did that! Yay, activist, Zeyda!
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Yeah, my big mouth always gets me in trouble, but for someone to say that she just put her peanut butter down and went for a walk and that cured her RA really set me off. I've had a terrible week, and weekend...that's probably what set me off. Oh well, better her getting the rath of Zeyda than my husband :)
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I am here to say that I am picking up my pb crackers at this moment and sitting down to rest! The wrath of Zeyda was true and needed. Hope you are having a better week now!
Past Entries
| June 2009 |
Monday, 6/08
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May 2009 |
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Tuesday, 5/26
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Sunday, 5/24
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Thursday, 5/21
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Thursday, 5/14
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Saturday, 5/02
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April 2009 |
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Tuesday, 4/28
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Saturday, 4/18
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March 2009 |
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Sunday, 3/22
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Thank you for the true words of wisdom! We fight the fight and keep each other strong!
You are a blessing and an inspiration!
Sandy
SKMac