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markiz
Male, 59, pembroke pines, FL
"22 +3/4 months post TX today!- getting better - good enough to get outa town again! - I got outa town the 23rd!"
11:44am, October 29, 2009
new labs, new meds Mood
Sunday, July 19, 2009 | A General Update story
went for labs tuesday- some elevation in liver enzymes, indicating the dragon is awakening- not unexpected, I know hep c is an uphill battle. just hope maybe docs will put me on that new treatment, meanwhile coordinator raised my peg and rivo meds- and I have to go back next week!  not a good sign, but what can I do!   I feel ok though and I had 2 birthdays I wouldn't of had otherwise-   so I will hope for a few more, and enjoy life, and try not to worry!   I am so much better than I was before transplant,  but I will never be ready to go back!Tongue out

UPDATED GOALS

survive my liver tx

Progress 50%

Encouragements: 6

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Comments

  1. rbm

    I'm praying for the slaughter of the dragon! I hope you get the new treatment....please keep me posted on your news.


    rbm

  2. markiz

    hey, isn't it peg nite!? mine is tomorrow- full dose and an extra rivo every day- uggh!


    markiz

  3. JBOB11

    Hey Buddy, where`s the old give em hell Marky I know and love. Don`t get down get even. How? you ask. Well put Lillith`s face on that dragon and slay the bitch once and for all. Hang tough and be positive. Don`t make me have to come to Florithink thats` a great idea after all come to think of it . I`ll come with all my nintendo video games and we could play mario bros. all night and then donkey kong after breakfast of cream of wheat YUM! What say you Marky? You gonna slay the bitch or are we going to play nintendo til you go crazy,HUH?...Jeff~~~~~~~~~~~~luv you man!


    JBOB11

  4. markiz

    we can do both! I got all the games on wii you just gotta fight my older boy to play and to slay lilith! he got first dibs on both! anyway I'm not getting down, but my options are limited if the peg or this new stuff don't work. I like your idea of putting liliths face on the dragon, but the dragon will be pissed! come on down!, you don't scare me!


    markiz

  5. cookiem

    I am so very sorry to hesar that you have to go through anything again. I am with you all the way. My thoughts and prayers are on your side. You sound like the strongest person and you will get throught this too. It is just a shame that we have to suffer in the process. My birthday is next week and I also cherish every birthday that goes by. They take on a whole new meaning!
    Cookie


    cookiem

  6. Angela53510

    How high are your enzymes? My ALT was 300 in Feb. and now 200, because of the methx I take for RA. My latest scan shows fatty liver and cirrohsis. I don't have hep C, but am looking seriously for any kind of liver interventions or supports you might have discovered in your quest.


    Angela53510

  7. sailinby

    Just got round to reading your posts. Sounds like youv'e been thru the mill.
    I had treatment for HC few years ago. Had 6 months of injections which i did at home each Saturday eve, when all of my friends were out on the town. Had injections and pills. After 6 months it cleared. Thank god. The brain fog was awful.
    You may be able to help me with a querey. For many years i tred to have courses of Hep B as was working in Healthcare/ hospital but none of them ever took . They mentioned non specific Hep but that was all. Many years later (10), my HC was found and i had to fight for treatment. Few months after that thyroid bloods came back as underactive. One thing after another. Are they all connected? Maybe someone will know.
    I used to do lots of meditative stories in my head, after the injections. How children are encouraged to fight diseases; goodies and baddies etc. had a sort of Starwars thing going on in my body Imagery- thats what i'm trying to say. don't know if that was successful but i'm sure it helped me. Hope you continue to feel well and enjoy the tanning.


    sailinby

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