Join Now
slredma 
9:26am, June 10, 2009
I feel like I'm on that yellow brick road where Dorthy is trying to get home and she encounters problems on the way. I have been waiting since the 3rd when I went in to see my Dr for my post op to get my medical records together. I called this Monday and I was told the records lady wouldnt be in till today. I'm just thinking what could be taking so long? I have all my other medical records from all the other Dr's Ive seen since Oct.08 and hospitals I have gone to as well. I called Mayo yesterday and they want a "Summary letter" from my Dr. I have to have one basically saying he doesnt know what to do next and he cant figure it out. Ok..So I call back to my Dr's and let them know and I was told that will take about 3 more days to do. The one nurse said she thought I could just drive there and be seen. I wish it were that way but I dont want to make a trip for nothing and I was told as soon as everything is faxed over a review board looks it over and it takes 2 weeks. I then will get a call as to what specialists I will be seeing. I'm calling my Dr's again today to talk with the records lady to see how much longer it will take. They said they will not fax anything to me but I asked if they could at least fax to the Mayo clinic. I will find that out today. I left yesterday to get my van worked on and my husband put my vase of flowers on the kitchen table...next to all my medical records....I have new kittens and when I came home my heart dropped. He just kept saying how sorry he was..I was just in disbelief..I ran dowstairs and we seperated all the records and dried them out. I had color photos from my laps in there to..I'm glad that day is over. So, it looks like I wont know a date for at least 2-3 weeks and maybe even longer if my Dr's office doesnt get on the ball!!! I told her I would take the 4 hour round trip to get them if I have to and I just might do that..It's so funny..I call them every day. I figure if I bug them enough they will get it done for me. I have played the waiting game all last week so now its my turn. I just want to get back to a some what normal life again and stop being in so much pain. Ithink I'm making up for the times I really tried to avoid doctors. They are paying me back. Maybe I will take an apple to every doctor I go to in hopes I wont see them again..haha
Comments
Since October last year I havent done nothing but focus on trying to get better. I've went to some family gatherings but nothing out of the norm. I had tickets to see Kieth Urban and Taylor Swift and I thought at the last minute I wasnt going to go yesterday. My family said GO so I went. I sat in handicap with my mother in law since she cant walk stairs and it was awesome! It was a full house of course. I really just wanted to see Urban and he stayed longer since the croud was screammng for long after wards. I had a lot of pain but it was worth it. I know in a couple weeks I'm going to be back to recovering again and i wont be able to get out for a couple weeks. I'm not looking forward to a laparotomy but he wants to explore better than with laparoscopy since he knew I had one before and my gyn didnt know what he was looking for. At least I know I have tried everything to try to avoid surgery with 2 ct scans and a complete mri that all came back unremarkable. I'm going to Wisconsin for the 4th. Some of my husbands family live there so we're staying with them for the weekend. I think I might be ready to relax one weekend after all this. It's the pain I'm afraid of not so much the surgery. It seems like my pain level has been short lately. That or I'm just tired of being in pain all the time and I just want to get back to a normal life before all this entered in my life.
Comments
-
Sounds like you're on the right track :) I understand your fear of the pain being there, wondering when it'll be gone. I'll be thinking good things for you when you have your upcoming laparatomy. Keep the faith.. warm hugs to you :)
-
Well, I called my pain specialist and told them I couldnt wait any longer for my results so a nurse came on the phone and told me my MRI came back unremarkable. She said there waas nothing wrong and they did my entire back not just the lower part. I told her I was going to call my endo specialist to go back in to see him and that I would keep my appointment for the 30th to see him to get my records to take to my endo specialist. I called my endo doc and the nurse said she would talk with doctor tomorrow since he isnt in today cause the notes said if the pain specialist cant find anything he wants to do a laparotomy. I thought he was going to do a laparoscopy but I'm having a lot of bowel problems so its the better way to finding a solution to my pain.He's 2 hours away from me so it saves me on a 4 hour drive both ways for him to tell me he wants to do a laparotomy. I know I have adhesions but they were never biopsy during the first laparoscopy. I also know durring that procedure he never looked behind my rectum for endo. This time I will finally find my answers I've been looking for and help with the pain I'm in. I also need to get off of estrogen and he will have to help me with that. I'm not sure what to take to keep me from my hot flashes and to lead a normal life in that area. I'm hoping for a normal life and not to be taking pain pills all the time just to functon daily.
Comments
Past Entries
| June 2009 |
Tuesday, 6/09
|
|
May 2009 |
|
Sunday, 5/31
|
|
April 2009 |
Tuesday, 4/28
 |
|
Tuesday, 4/21
|
Wednesday, 4/15
|
|
Monday, 4/13
|
Monday, 4/06
|
|
Friday, 4/03
|
|
Thursday, 4/02
|
|
March 2009 |
|
Monday, 3/30
|
|
Sunday, 3/29
|
|
Thursday, 3/26
|
|
Thursday, 3/26
|
|
Monday, 3/23
|
Goal Updated
Staci, so sorry you are getting the run-around on all of this. Everything seems to take forever, the weeks extending into months it seems. I know how you feel, wanting that "normal" life again. I've pretty much resolved myself to enduring chronic pain for the rest of my life. I hope your situation will be different and that your doctors get the ball rolling soon. I swear doctors, they're an irritating bunch; I've pretty much lost faith in the medical world :(
Elana809