Goals update
August 24, 2009 10:07am
Previously drank about 12 oz per day? Now, worked up to drinking at least 36 oz a day!
Drinking water seems to have decreased my joint pains (still …
Progress
35 %
moojean 
10:43am, August 24, 2009
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About Me
moojean
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About Me
Looking to make new friends and curious of others who've used alternative therapies for these diseases. Trying some myself and would like to swap experiences with others. My symptoms are considered mild compared to some others on this forum. Feel I had to quit my job as researcher in biotech (rheumatoid arthritis and SLE) because of the stress/pain from symptoms. Looking to start a new career, focus on my health (mental and physical), and hopefully start a family soon.
Looking to make new friends and curious of others who've used alternative therapies for these diseases. Trying some myself and would like to swap experiences with others. My symptoms are considered mild compared to some others on this forum. Feel I had to quit my job as researcher in biotech (rheumatoid arthritis and SLE) because of the stress/pain from symptoms. Looking to start a new career, focus on my health (mental and physical), and hopefully start a family soon.
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Journal
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Journal Entry for July 15, 2009
July 15, 2009 7:20pm
YAY! PCP just called me and said my TSH is 0.02 and T4 is 2.5, and since I'm on 50 mcg synthroid, I can stop completely. The last time I …
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bloody mucus in stool!
June 20, 2009 9:30am
ack! have bloody mucus in stool for almost a month now. I was hoping it'd go away! went to doc and they want me to take asacol again! I took it …
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Journal Entry for June 11, 2009
June 11, 2009 9:16pm
changed from generic to synthroid. got a little depressed, but it's okay, just part of the process.can't wait until my blood test in a couple …
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Thyroid meds and MCTD
June 4, 2009 4:05pm
I'm begining to wonder if my MCTD symptoms were the result of thyroid medication at too high of a dosage? After lowering the dosage from 88-75-50 …
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Hugbook
Thanks
Thank you for the prayers. I am desparately in need of them.
Hug
Hi I have a new profile it is ICish and I will send you a friend request. I have been busy all summer planning and packing we relocated from Boston to Austin TX
Hug
Thanks for your friend request! Hope you're well. I've only just seen your reply to my "looking for new friends" post in the Social Anxiety support group but I just wanted to thank you for it. that's exactly how I feel a lot of the time reading some profiles! Though it's not good to make comparisons I think we all do it to an extent and it's worse if we're shy and feel that people aren't interested in befriending us.
I'm sorry to read about the physical problems you've been suffering. I don't really know about alternative therapiss but I hope you can find something that helps you to cope with the pain.
Hope you have a good week, write to me whenever you want to.
Take care, Steve-
Present
Thanks for the prayers. I hope you are well.
Hug
ohhhhh thank you so much for your kind words and advice. I really appreciate. What you said totally make sense to me. I get soooo scared everytime someone is sick, I hate it when they come to work sick and my friend that sits next to me is sick ALL the time. But truly what you said about the flares, cause these past few weeks have really been bad.
Well I hope you are well, take care and thank you again.
hugs,
paige
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Photos
moojean hasn’t uploaded any photos yet
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Goals
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Support Groups
Close MCTD
I was diagnosed with MCTD 1.5 years ago. My symptoms are joint/muscle pains, fatigue, raynaud's, swollen lymph nodes, esophagus probs. My rheumatologist is recommending me to take plaquenil since the diagnosis. I am searching for alternative treatments to try first.
Treatments
- Plaquenil Considering
- if alternative treatments do not work or if symptoms get worse I will start taking this.
- Psychotherapy Working / Worked
- 1x/week, been seeing therapist about all my medical problems treated for depression its really helped my depression and relationship with husband.
- Vitamin C Working / Worked
- 2 grams/day buffered ascorbic acid, given for my connective tissue repair. seems to be working...
Close Hypothyroidism
Had hyperthyroidism then became hypothyroidism (Hashimoto's) 2.5 years ago.
Treatments
- Acupuncture Working / Worked
- ~1x/week for 4 months, working so far, my need for thyroid medication has very slowly dropped.
- Armour Thyroid Considering
- if thyroid levels stabilize, will try this instead of synthroid.
- Synthroid Somewhat Helpful
- was on 88, 75 mcg, eventually had hyperthyroid symptoms plus wrist joint pain in the mornings? changed to 50 mcg. stopped taking it!
Open Raynaud's Disease
Started about a year ago after MCTD diagnosis.
Treatments
- Ginkgo Too Soon to Tell
- 160 mg/day, ginkgo leaves, can't tell if it's working yet
Open Irritable Bowel Syndrome (IBS)
blood mucus in stool with no other symptoms. went for colonoscopy and had ulcers in colon. treated with asacol. Treated for H.pylori infection in past.
Treatments
- Asacol Working / Worked
- started working after week.
- Avoid Certain Foods / Chemicals Working / Worked
- Probiotics Too Soon to Tell
- once a while, trying VSL #3
Open Shyness
Always been extremely shy.
Treatments
- Pets Working / Worked
- Psychotherapy Working / Worked
- Doc says challenging myself in difficult social situations has been helping me.
- Self-help Working / Worked
