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  • About Me

    Image of cireebo

    cireebo

    Male, 43, Divorced
    Dallas, TX, USA
    Member since March 19

    • About Me

      I was diagnosed with MS in April 2003 but I had been going to many different doctors for 3 years before being diagnosed. My symptons were so sporadic and brief that no one could figure out what was going on. I took Avonex for 2003 to February 2008 and the shot once a week work pretty well for me. I am now on Tysabri. The IV once a month is very convenient for me being that I am very active. initially, my symptons were all all over my body but now most of my problems have been on the right side of my body (right leg and foot). I also have problems sometimes with fatigue, balance, cordination and bladder.

      I was diagnosed with MS in April 2003 but I had been going to many different doctors for 3 years before being diagnosed. My symptons were so sporadic and brief that no one could figure out what was going on. I took Avonex for 2003 to February 2008 and the shot once a week work pretty well for me. I am now on Tysabri. The IV once a month is very convenient for me being that I am very active. initially, my symptons were all all over my body but now most of my problems have been on the right side of

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  • Support Groups

    • Close Multiple Sclerosis (MS)
      Type: Relapsing-remitting MS

      I was diagnosed with MS in April 2003. I went to many different doctors 4 years before before being diagnose trying to figure out what was going on. A lot of my problems seem like they were being generated from my back. I had sharp pains in my lower back and legs that would come and go. Also had temporary tingling and numbness that would sporadically come and go.

      Treatments

      Avonex Working / Worked
      Avonex worked pretty well for me. However, I would still have flar-ups and fatigue was a constant issue. I only had side effects when I first started taking the Avonex and it included chills and emotional swings. But, tylenol took care of the side effects.
      Baclofen Working / Worked
      It seems to work for the most part when I first started taking it but I don't know if it is working anymore.
      Prednisone Not Working
      predisone didn't do anything for me.
      Provigil Working / Worked
      This has worked great for my fatigue. I take 100MG
      Solumedrol Working / Worked
      That solved a lot of my problems the first time around when I was experiencing a real bad flare up.
      Tysabri Somewhat Helpful
      I have been taking Tysabri treatments for about 1 year & 4 months now. I haven't noticed any improvements in my symptons. In fact, it seems like my symptons got worse. I went from running to not being able to run and sometimes it was a struggle to walk. I was experiencing more muscle spasms/tightness & right toe drag than I have ever experienced. I tried several different things such as solumedfrol, Baclofen and Tizanidine but none of this work. Botox treatment in March have improved my sympton
      Zanaflex Not Working
      did not work for me at the time I was taking it.
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